thyroiditis and Graves

[stevey118]

Hi, I've been treated for the last 4 years for Graves Disease with block and replace here in the Netherlands. Now, in preparing for a thyroidectomy, I had a scan which revealed thyroiditis. As far as I can see, this is not a symptom of Graves Disease. Without medication I am still hyper. Any ideas what this could be?
thank you,

Stevey118

[Studdyke32]

I have graves just found out this week I'm lost what do I do am I classed as disabled when you have this

[Smilerdeb]

P.S
Forgot to mention....
I am doing great now 7 months post RAI and 4 months post TT but I had Cancer and I researched this Disease inside out.
I logged every symptom, I wrote (and still do) a journal everyday so that I know if I get a certain symptom, I am either heading hypo or hyper and my bloods are now done 3-4 weekly instead of weekly.
I am super drug sensitive and whereas most people wait 6 weeks for results of levels, my meds go into my system within 3 days of taking them.
So these are the things you have to research.
On how fast or how slow the meds will react (by the looks of your posting...fast) and on how to deal with going Hypo after TT.
I was hypo after 5 weeks post RAI although my Doctor didnt let me crash hard.
Make sure if you have a TT that you go home with meds as you will need them basically straight away.
Many people go home with no meds, get told to return back in 6 weeks and by then they are in hypo hell and suffering needlessly when there is no need for it.
Just research everything and then you will know your symptoms inside out and hopefully get your levels stable pretty quickly.

[Smilerdeb]

I too have Graves Disease and sufferred with thyroiditis for minimum 2 years until I had RAI done, then a thyroidectomy.
Anyone can get thyroiditis...either Hashimoto or Graves Disease sufferes.
Its as Stella said....your antibodies are attacking the thyroid and if after 4 years you have been unable to control the Hyperthyroidism, then a TT would most probably be the best thing..... BUT.....
Before they go removing your thyroid...how was Graves diagnosed?
Bloods?Ultrasound? Uptake Scan?

Many who have Graves are led to believe that once the thyroid is removed, then all will be fine and dandy.
This is not the case for everyone.
You still have to tweak your meds (T4) and this could take up to a year (sometimes even longer).
So please research all you can and make sure you have the right diagnosis for Graves before you have your Thyroidectomy.

I went through hell BEFORE my thyroid was ablated and yes, I still went hyper (from meds) after I had no thyroid so please dont think that as you have no thyroid...you cant go hyper.
You can.
All I am saying is.....check EVERYTHING.
I was diagnosed with Graves on the basis that my sister has it.
That wasnt good enough for me.
I then had bloods (antibody tests) and an uptake scan that confirmed it.
What was your last lot of bloods and results of uptake scan?
It would be interesting to see.
The Hyper you still have...may be from the B&R (block and replace) and the T4 med may be too high.
If I had no goiter, no nodules, no Thyca....I would be asking all there is to know about this Disease as the thyroid controls many body organs and bodily functions.
Be 100% sure before you do anything.
All the best....

[stevey118]

Hi,

my symptoms are more or less the same as they have always been (since I started treatment). In other words: pretty normal.

thanks,

[stella5349]

Thyrioditis is an inflammation of the thyroid. In most cases an attack of antibodies is going on causing the swelling.

How are you doing with symptoms besides the swelling?