Dear Dr. M.L--I have seen you advise patients to make sure the tablet they take is
Synthroid and not a generic. Do you make this recommendation in all cases, or just for certain patients with specific thyroid conditions? I am currently taking
levoxyl (Monarch-Jones) after a TT in July for nodules, and my
TSHPituitary and tsh
Tsh is between 1 and 2.0. My doctor and surgeon both said there's not a proven advantage to
Synthroid. Thank you in advance.
My sisters have the same problem with generic thyroid replacement. Perhaps we are just more sensitive to it than most but I can tell the difference (for me taking the generic felt like going completely off Synthroid for RAI treatment).
The real issue whether using a brand name or generic is if you change manufacturers you must get lab's done at 6 weeks to confirm levels. Once you are on a particular brand (manufacturer)and have stable labs there should be no issue.
Pharmacies should well understand the importance to not switch a thyroid replacement user to a different brand or manufacturer whether it be Sythroid or a certain brand of generic such as Unithroid, Levoxyl. The real responsibility falls on the patient to be aware when they pick up their prescription and check it at the counter before paying. If you are forced to mail order your meds your out of luck. I personally would never order my thyroid replacement through a mail order program.
To avoid any mix up's I always insist on prescriptions for 100 tablets which I request the pharmacy give me in the original unopened bottle. It costs me $4.50 more ($38.00 for 100qty) vs. paying the $10 co pay for monthly prescription refills. I then also have the actual expiration date. Synthroid on the other hand would cost around $55.00 for a bottle of 100 and $60 in co pay.
Being brand new to thyroid replacements, I had no idea. About five months after my thyroid surgery (cancer) my pharmacy (Walgreen's) just decided - out of the blue - to give me generic one month. I didn't know better - it's never been a problem with antibiotics or anything else. It affected me right away. I finally ended up calling my doctor and he figure out what had happened right away. He called the pharmacy who said it was my insurance wanting them to put me on a generic. The doctor left a standing order for only name brand on my thyroid replacement no matter what the insurance company said.
Similar thing happened to my sister around the same time - different pharmacy (local store in her county) and different insurance but she got a generic handed to her and had similar problems.
It would be nice if thyroid problems came with an instruction manual.