Our sweet grandson, not yet three years old, has been exhibiting some symptoms of Tourettes since he was about one... he has a shivering, grimacing action that occurs every few hours all day, and the pediatric neurologist--after elimninating other possibilities like epilepsy, and after various tests including an EEG, bloodwork, a two hour behavioral observation, and complete physical-- has told my son and daughter-in-law that his behavior is indeedsymptomatic of the "tics" of Tourettes. I am hoping that with this site, we can find some helpful suggestions from parents of very young children with this problem... are there nutritional helps? how about natural or homeopathic things? chiropractic? I would greatly appreciate any ideas or support on this, as we are new to the topic...thank you.
I'm so sorry to hear about your grandson. My own son's symptoms began around the same age. I am not up to date on all the natural or homeopathic things today and I retired from nursing in the late 1980's. But I could be of some advice to you on other things, like what else to expect, especially him being so young! Are you aware of the other types of involuntary things that go along with the "tic"? There is Echolalia, which is repeating the same word or sound or even profanity, over and over, uncontrollably. Copralalia is another vocal "tic", which involves making repetitive animal sounds. The biggest problem that I ran into was other people's opinions, constantly, such as "can't you control your son?", and remarks like this can be very damaging to families of Tourette victims. He might need to be in a school for children with special needs, a normal classroom would be too disrupted by his behavior, but maybe not now. My experience goes back to 1975, so things have changed a lot. Please feel free to write me anytime, about anything at all, or nothing. Just to chat. Once again, I'm so sorry that it's Tourette's, but you're at the right place.
Hugs & Prayers
sorry about the spelling and any errors, I'm not an expert, just experienced
Hi I have an 19 month old daughter, Tatum, who has had "muscle spasms/breath holding spells" since she was about 7 or 8 months old. Her pediatrician URGENTLY referred us to a pediatric neurologist, who did 11 tubes of blood work (a FULL panel) when she was 14 months old, and then when everything came back 100% normal then referred us to the BEST epilepsy and neurology specialist in Los Angeles who examined her (but did not see an "episode" during her appointment. He said she was VERY advanced for her age, physically and verbally able to do more than what was expected 'normal' of kids of 6 months older and that he thought it was just behavioral and she would grow out of it around age 5. However he ordered a Video EEG and said I could bring her in at anytime, BUT he was 99% sure it was nothing to worry about. I agreed with him at the time but as she is getting older the "episodes" are increasing. I'm kow wondering if it could possibly be a #tick or associated with #Tourette's Syndrome. Please watch the video of her and share, I need help!! http://www.youtube.com/watch?v=CcB9eGa-FiU&feature=youtube_gdata_player
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