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Trigeminal Neuralgia   (Expert Forum)
 | 
Trigeminal Neuralgia
Answered by
Michael Lim, MD - brain tumor, trigeminal neuralgia
Johns Hopkins Medicine Baltimore - MD
This forum is for questions and discussions relating to Causes, Clinical Trials, Diagnosis, Family and Friends Issues, Living with Trigeminal Neuralgia, Pain Management, Research, Risk Factors, Symptoms, Surgery and Treatment of Trigeminal Neuralgia.

Trigeminal Neuralgia

by Mac510, Aug 06, 2008 07:36AM
I have been living with trigeminal neuralgia since 2004 when it was first diagnosed. I am taking carbamazepine, occasional lamotrigine and have recently been advised by my neurologist to add pregabalin, 2 daily. At present, my TN has shifted from the usual position from the left side of my face and down the left side of my nose to a new and very painful path from the scalp (front forehead) and down the left side of my nose. I cannot bear to touch my scalp without bringing on a spasm. Is it normal for trigeminal neuralgia to change position in this way? Thank you.

by Michael Lim, MD, Aug 17, 2008 10:13PM
In general, it is possible to TN to change in distribution over time.  I would suggest getting reevaluated by your neurologist.  If medical therapy fails, there are very effective surgical therapies!  Good luck!
Member Comments (2)

by hava, Aug 13, 2008 05:28AM
To: Mac510
While waiting for medical answer, try the following.If this helps, come back and I will post the complete set of exercises to help you.
Anulom Vilom –
Close your right nostril with thumb and deep breath-in through left nostril  
then – close left nostril with two fingers and breath-out through right nostril  
then -keeping the left nostril closed  deep breath-in through right nostril
then - close your right nostril with thumb and breath-out through left nostril.
This is one cycle of anulom vilom.
Repeat this cycle for 15 to 30  minutes twice a day(maximum 60 minutes in one day). If you feel tired or dizzy, stop and resume after 2 minutes.
You can do this before breakfast/lunch/dinner or before bedtime or in bed.Remember to take deep long breaths into the lungs.You can do this while sitting on floor or chair or lying in bed.
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