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Inner cheeks and gums swollen and AFP
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Inner cheeks and gums swollen and AFP

I was diagnosed with atypical facial pain from plastic surgery, but did anyone else have their gums and inner cheeks swell up?  I've been to two dentists who say my teeth look fine.l
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485259_tn?1326312778
Sorry to hear you have this diagnosis.Which doctor diagnosed you with this? A neurologist or the plastic surgeon or another type? It takes a lot of ruling things out to get to that dx, so I am just curious. How long have you been diagnosed with this condition? I have not heard of those symptoms as part of TN or ATN, although you say facial 'pain', not neuralgia specifically, more general.  

It's good you have eliminated the dental possibility, as many people go through unnecessary procedures thinking it is their teeth.

Also, are you on medications for this? There are side effects to some, perhaps that could be something to check into. Check with your current physician and/or pharmacy.

If you have not seen a neurologist yet, please consider doing so.  If you need help finding one in your area or more information you can also refer to the Facial Pain Association at www.fpa-support.org
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Avatar_f_tn
Another good site is   http://www.livingwithtn.org
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485259_tn?1326312778
Thanks Nancy99 I haven't seen that site.
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Avatar_n_tn
My gums swell up as well. I was wondering if anyone elses did too. I have been suffering from TN for about 8 years now. I take Tegretol and it helps alot. But there are times when nothing helps. Good luck to you
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I haven't had a confirmed diagnosis yet but my doctor and dentist both think I am suffering from some form of atypical facial pain.  I have had all my teeth cleared.  I've had an MRI, bone scan, cat scan, EMG, blood tests and a panoramic x-ray.  Now I'm waiting to see a head/neck specialist.  I too have swollen gums and cheek mostly right sided, numbness, earache, headaches, facial weakness, sharp shooting pains occasionally (Bell's Palsy was a negative) and have had all these symptoms for over a year now.
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"Atypical" is doctor-speak for 'I don't know'. Be aware that lots of doctors of all types have very limited experience with facial pain patients.

Personally I had to go thru 6 doctors before I found one that helped me. And from chatting with other patients, searching for the right doctor and a correct diagnosis happens more often than not.

Let us know how it's going,
Nancy
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Yes I'm finding that out....my doctor tried to set me up with an ENT but they sent the referral back saying that I should see a dentist whom I've been seeing for the past six months (a little lack of communication?).....so without even looking at me and clearing my ear, they said to send me to a head/neck specialist.  I can't seem to get anywhere lately.  It appears from reading different posts that a facial pain clinic is the route to go?  I'm waiting to see if the head/neck specialist can figure it out and if he can't my last resource is a facial pain specialist in Toronto which I'm trying to leave for last because it costs me $300 a visit as this is considered dental and I have no coverage.  I have seen her once and she put me on a Prednisolone rinse for mild lichen planus.  She also was the one that ordered the cat scan, bone scan and blood work but this had to be set up through my doctor because she is a glorified dentist and can't order the tests herself.  I ended up getting the results from my family doctor because i couldn't afford to go back to her and the tests all came back normal.  Maybe I will have to bite the bullet and go back to her.  I was already under the care of a neurologist when they were testing me for bells palsy and he didn't investigate any further after the MRI came back normal.  This is sooooo frustrating just trying to get diagnosed!!
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Avatar_f_tn
Actually a facial pain specialist was my doctor #6 who helped me.  He is a dentist with additional medical training. He practices at a large teaching hospital so he has a team that includes a neurosurgeon and other doctors that he consults with.  

But like you, I have to pay him out of pocket because the insurance doesn't recognize a dentist in a medical situation.

Unfortunately diagnosis is done by ruling out everything else. Which means tests and lots of different doctors.

Hope you find some answers soon.
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