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TN

November 15, 2009

Hi

I have been having TN for 5 years now (59 years old) and have stopped carmazepine.  When I first started, doctors at the Dental Centre told me to go for liver tests.  I started having TN after I was laid off a job.

I still have sparks and triggers now and then, although bearable.  I would like to know if I carry on without medication for life, would it turn into a worse stage and triggers other nerve areas including the head and eyes? The reason I dont want to take carmazepine/neurontin is because I am scared that it would affect my liver in the long term.

Please give me your frank advice.

Thanks and regards
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Avatar universal
Hi,
Thank you so much for your feedback and thoughts. Much appreciated.
Helpful - 0
180749 tn?1443595232
You are not keen on medication, so try this natural method and come back to report your progress on this thread(even after 9 months).It will help someone.
To to get relief from Tn trigeminal neuralgia naturally, the full pranayam exercises are described below.You can do this alongside any medication.
This works gradually, so allow time (3 months to 9 months) and concentrate fully on the breathing, with eyes closed. Keep a record of episodes and how you are feeling. This will show you a trend.Avoid cold drinks and drink warm water.

Build up your timing gradually.If you feel tired or dizzy, stop and resume after 1 minute.
Kapalbhati -(Do it before eating) Push air forcefully out through the nose about once per second. Stomach will itself go in(contract in). The breathing in(through the nose) will happen automatically. Establish a rhythm and do for 10 to 20 minutes twice a day. Not for pregnant women. Seriously ill people do it gently.

Anulom Vilom -  Close your right nostril with thumb and deep breath-in through left nostril  
then – close left nostril with two fingers and breath-out through right nostril  
then -keeping the left nostril closed  deep breath-in through right nostril
then - close your right nostril with thumb and breath-out through left nostril.
This is one cycle of anulom vilom.
Repeat this cycle for  15 to 30  minutes twice a day.
You can do this before breakfast/lunch/dinner or before bedtime or in bed.Remember to take deep breaths into the lungs.

Bhramri Pranayam -Close eyes. Close ears with thumb, index finger on forehead, and rest three fingers on base of nose touching eyes. Breathe in through nose. And now breathe out through nose while humming like a bee.
Duration : 5 to 21 times

After you are better, continue the pranayam once a day, to keep the Tn away.
Helpful - 0
Avatar universal
I've had TN since December 2008 (47 years old).  From my understanding, you can go into remission off and on.  I understand your concerns about liver problems.  My doctor does blood tests every 3 months.

There are at least five different procedures (surgeries) that can be done to stop the pain completely.  However, none of these procedures come with a guarantee.

My doctor prefers I have the pain under control with medication so that the nerve does not become "sensitized" to shooting off abnormal pain.  I had a Gamma Knife in April and am still waiting to see the results (it takes 4-6 months and sometimes longer to get to the final results with this procedure).

Everyone is different -- but you are still young -- if one of these procedures would work for you, you should research, find the best neurosurgeon in your area with lots of TN experience and have one of them done.  In that way the medication would only be temporary and you'd have a chance at living without TN.

Best of luck in whatever you decide.
Helpful - 0
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