24 years old and my body is falling apart, no one knows how to help me

[scaredsilly91]

I need some guidance, I genuinely don't know what to do. No one knows what is wrong with me or why I keep developing new problems. I am 24 years old, female, average weight. These are my symptoms and diagnoses:

- Hypothyroid (TSH is mostly ok but free t3 and free t4 just will not go into range)
- Rosacea
- IBS and food sensitivities (improved significantly since SIBO treatment but still an issue)
- Fibromyalgia, probable myofascial pain syndrome
- Chronic tension headaches and silent migraines
- Raynaud's
- Erythromelalgia (this is the one ruining my life the most right now, I literally can't go outside during the day)
- Dry mouth, eyes, skin
- Alopecia androgena
- Low progesterone, low-normal estrogen, low testosterone
- Irregular, painful periods and random bouts of amenorrhea (since puberty)
- Vulvodynia, vaginismus, probable interstitial cystitis
- Recurring low vitamin D and ferritin
- Asthma (improved from childhood but still a problem)
- Severe fatigue
- Chronic derealization and brain fog
- Extremely poor memory
- Major depression, anxiety
- ADHD-PI
- Insomnia
- Restless leg syndrome
- Environmental allergies
- Easy bruising, slow healing

I am currently taking 90mg of Armour, a compounded progesterone capsule, 20 mg Vyvanse, and vaginal estrogen.

The endo I saw last wants me to switch to levothyroxine / cytomel combo, but I was on levo for two years in the beginning and it helped my levels but the side effects made me feel worse than before I was diagnosed so I am hesitant. At the same time it's obvious my current regimen is not cutting it. The progesterone has been very, very helpful but I feel like my hormones are still all over the place.

The last five years everything has gotten increasingly worse and I am extremely limited in what I can do. I have seen literally dozens of doctors and been tested for what feels like everything under the sun, many of them multiple times- celiac, Lyme, Lupus, Sjogren's, various deficiencies, PCOS, scleroderma, rheumatoid arthritis, Guillan-Barre, etc etc. My ANA and histone antibodies always comes back barely above the threshold, my IGA and WBC barely below. My results for Immunofixation ELP came back with "no monoclonal protein seen on immunofixation" but they could find no reason for that either. My abnormal results are just never abnormal enough to be significant. I've had normal MRIs and CTAs, EEGs and EKGs. I've tried whole food diets, veganism, raw food diets, Paleo, green smoothies. I'm gluten / dairy / soy free. I've wasted hundreds of dollars on supplements and vitamins and entire years on endless research, nothing. I've even tried remedies from the very alternative side of the fence. I just keep getting worse.

I am so miserable. I can't go outside during the day anymore unless the temperature is between 60-70 degrees and it's completely overcast and not humid. If it's too chilly the Raynaud's flares up. If it's too warm, humid, or sunny the rosacea and erythromelalgia flares up. If it's sunny I may also get a migraine and be extremely ill or tired for days after exposure if it's long enough. Even if the weather is perfect for me, the exertion of walking (my only real form of exercise at this point) will flare my feet up and possibly my hands.

It's not only the weather. I have to be extremely aware of what fabrics I wear, what shampoos and lotions and soaps I use, what food I eat, how warm my drink is, how I sit, how I walk, how I lay my head when I sleep, how hot my car is, how cold the fruit I'm cutting is. I can't drink alcohol or wear makeup or lay in the sun or sit around a bonfire. I can't have a snowball fight or climb a tree or read a book or go for a run or laugh for too long. I have to remember and avoid a hundred different triggers for a dozen different disorders, some of which contradict each other (Raynaud's and erythromelalgia are utter hell.) Even with all the avoidance my body flares seemingly at will. Sometimes I will have six months of back to back flares- fibromyalgia, then stomach, then rosacea, then migraines, then bladder and vulvodynia, then my period decides to show up after a year of absence, then maybe I'll get a surprise and develop something new and unexpected. I feel like I'm playing minesweeper.

I had IBS and restless leg syndrome before I could even speak full sentences, and was constantly ill with strep. I developed rosacea, vulvodynia, and bladder symptoms before I hit puberty. Everything else started picking up in my early teens, and when I turned 20 it was like I was hit by a train. It's been a lifelong struggle. I am exhausted, I am in pain, I am hopeless and depressed and always waiting for the other shoe to drop.

I am so tired. Please tell me what to do.

[JohnnyRocket244]

I sent you a private message if you want info on some conditions that will cause all of your problems.