I'll suggest the Indomethacin when I see the neurologist next. We've done MRIs already and found nothing except 2 very small aneurysm in the brain stem. The headaches are the most painful things I've ever experienced, move around the head, but are continuous, moving around all day and all night. The pain feels just like what I've since read about cluster headaches but the duration is nowhere near short enough. It's like a cluster headache on steroids. This is is the pure definition of hell. Spikes being driven through my skull 24 hours a day, 7 days a week, for the past 4 months, with no end in sight. God willing that drug will have an effect.
Hi
Welcome to the MedHelp forum!
Since you have a headache almost daily, what you have is in all probability not a simple migraine but a chronic daily headache (CDH). This can be the primary type—without any cause. One simple reason for daily headaches with nausea is compression of cervical spinal nerves. Another reason is TMJ, especially if the headache starts with chewing. The third reason could be severe acidity with or without GERD. The CDH could also be secondary to trauma, raised intracranial hypertension, high blood pressure, temporal arteritis etc. Hence all these need to be ruled out. If the headache lasts for less than 4 hours then it could be a chronic cluster headache or a chronic paroxysmal hemicranias. If it lasts for more than 4 hours it could be chronic tension headache, chronic migraine or altered migraine or hemicranias continua. Indomethacin is the drug of choice in hemicranias continua. In fact the diagnosis is considered confirmed if a patient responds to Indomethacin. Since a confirmed diagnosis cannot be given on net please discuss these possibilities with your doctor once. You may need some tests for confirmed diagnosis which may include blood tests, MRI etc. Take care!
I forgot to mention that I also keep seeing bright lights that get worse when the headaches are at their most painful and don't go away if I close my eyes.