4.5yr old boy, from 3 months old recurring fevers, vomiting, abdominal pain, congesting, coughing, swollen lymph nodes

[sreese01]

History of Symptoms
From 4 months to 4.5 yrs old: recurring high fevers, throat ulcers, stomach pains, congestion, coughing, swollen neck lymph nodes, .

Diagnosed and treated with ITP blood disorder at 17 months old.  No recurrance.

Has been through many specialists at Dell Childrens Hospital including immunology, oncology, hemotology, rhumetology, etc.  Repeated doctor visits, every couple weeks, for years.  Many tests ordered without positive result.

No diagnosis.

Have treated with Motrin consistently and it helps reduce inflammation.

Have had many blood tests for routine and exotic disorders, all with negative results.

Getting worse.

Recently perscribed predinsone and used 3 times with mixed results.

Please help.

[Dr. Kokil Mathur]

Hi
Welcome to the MedHelp forum!
I am sorry to hear about your son suffering so much. Since the symptoms involve mainly the lungs and digestive symptoms and have started pretty early, cystic fibrosis should be ruled out. Abdominal pain, vomiting, problems with stool, recurrent cough cold and fever are the hall mark of the disease.
Please discuss this with your son’s pediatrician. Take care!

[grannienannie]

did you take him to an ENT?. those are some of the symptoms i had as a child and it was a theoglossal duct cyst.