My first episode was 3.5 yrs ago and at first was every 6 months, I have now had 3 episodes in last 2 months.
Starts with a dull ache in my lower back that gets more intense, the achy feeling then spreads to my hip joints (where it is most intense) and then my leg bones and back, quite often I will feel shivery.
I did see my Dr once and she said 'that sounds strange' and did not take any further action!
It is hard to 'function' when I feel like this - just want to lie down and sleep.
Do you have any symptoms that might be associated with a kidney infection? When you feel "shivery" have you checked your temp.? Any burning or blood in your urine? Also, have you checked with a neurologist to see if you might have fibromyalgia? I know these are questions instead of answers but don't know what else might be going on.
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