Anyone know what this could be?

[annachrisp]

For the past four months I've had a wide range of symptoms. Inability to sleep, confusion, memory impairment, lack of concentration, lack of appetite, heart palpitations, hoarseness, speech trouble, and spelling trouble. My veins are also very large and noticeable, which is not normal for me. The tests I've had so far are an MRI, EEG, EMG, CBC, FANA, TSH, and a Metabolic Panel. Everything was normal. If anyone has any idea of what this could be please let me know. Any ideas are welcome.

[JohnnyRocket244]

It's funny I tell people I have May-Thurner Syndrome and no one seems to have heard of it. I've even told some doctors and they've said they don't really know what that is. But it's actually a common anatomical variant that up to 25% of the population might have, and a 1/3 of those could have 50% or more compression of the left iliac vein. That means that around 8% of people are probably experiencing problems from this condition and will never even know they have it. Unfortunately it is a poorly understood condition that most doctors assume if you don't have blood clots or DVT's then you won't have any problems. But May-Thurner has been causing me problems all my life and I never had any blood clots. Mine only got discovered because I went to an Intervetional Radiologist to have a vericocele embolization. This actually made my symptoms worse because blood flow got redirected out my left iliac vein which is where the actual problem was. My spine was crushing my left iliac vein between my spine and overlying artery. This was cashing reflux of blood back down into my groin and leg causing pain and numbness. It's also interesting that this condition is frequently seen in MS patients as well as Nutcracker Syndrome and I was having many of the same symptoms as MS, Some doctors are actually starting to treat MS as a vein condition which I believe is very possible. I know there is a lot of contravenes about this but Search: CCSVI and read some of the stories of how people are getting relief from MS through stenting of various veins. The one patient seemed to get the most relief from her symptoms after having stents placed for May -Thurner and Nutcracker. So from personal experience I can tell you that MTS can definetely cause cognitive dysfunction and some of the symptoms of MS.

[SassyLassie]

Hello~It sounds like the previous poster has a good solution for you. I am not familiar with the syndrome he is talking about, but it does sound like your issues. I would ask your physician for a referral to an Interventional Radiologist; hopefully, they will give you the answer you are needing and you will find some relief.

[JohnnyRocket244]

Yeah get checked for a condition that I just got diagnosed with recently. It's called May-Thurner Syndrome Without Blood Clots or DVTs and can cause every one of your problems. If you're like me and don't have any blood clots or swollen legs then most doctors won't ever think of this condition. It's a vein condition which is why an Interventional Radiologist should be who you go to see especially since I see you mentioned leg weakness and noticeable veins which I'm guessing are probably in your legs. This condition causes vericose veins and vericocele veins in men but what most doctors don't know is how it can cause cognitive dysfunction and interrupted sleep patterns as well. I was having the same problems insomnia, brain fog, memory and balance issues, back pain, muscle and leg weakness and all tests came back normal because it's a blood flow/vein condition and can't easily be seen on any scans unless an experienced doctor knows exactly what to look for. That is why I recommend seeing an Interventional Radiologist as this is who discovered I had May-Thurner and they also treat this condition as well. He placed a stent In my left iliac vein and almost immediately blood starts flowing normally and with 24 hours all my problems were gone. It's nothing short of miraculous how many problems I was having and it was all due to May-Thurner Syndrome. Another similar vein compression condition is called Nutcracker Syndrome. It's probably a good idea to get checked for this one as well as they sometimes occur together. I hope this helps and feel free to message me if you want more info.