Undiagnosed Symptoms Community
Begging for help!!!
About This Community:

This patient support community is for discussions relating to undiagnosed symptoms, breathing difficulties, feeling cold, cough, diarrhea, dizziness, fainting, fever, indigestion, itching, nausea, numbness, pain (chronic), paralysis, rash, sweating, swelling, urination problems, and vomiting.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Begging for help!!!

I have a 23yr old with ORO FACIAL DIGITAL SYNDROME. For the past 2 months he has been having "seizure" like activity only in the morning while eating breakfast.  He feels this episode coming on and is able to tell me.  His jaw tightens up, unable to swallow, has involuntary swallowing (vagus nerve?), drooling on one side.  These episodes can last from 10 mins to a few hrs. During the worst episodes he stares off into space with his eyes rolled up in his head and they are very bloodshot with him vomiting at the end.  Had an EEG done (Normal) with a CT scan done in the ER with bloodwork (both normal) during one of these worst episodes. Docs had no clue what it was.  His nuerologist is at a loss also..We are away till SEPT so I am sure he will run more test when we get back. He presently takes Ritalin La 40 mg daily and Risperdone 2 mg nightly.  Hr has been on these meds a good 15 yrs or so.  Any thoughts???  It is very frustrating to see him go through this. Some components seem behavior but stepdaughters (one's a nurse and the other a behavior specialist) who have seen these episodes think it is medical.  He has never been one to look for attention etc.  HELP!!!
Related Discussions
Continue discussion Blank
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Undiagnosed Symptoms Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top General Health Answerers
363281_tn?1353103243
Blank
SassyLassie
Hanmer Springs, New Zealand
1756321_tn?1377771734
Blank
Red_Star
Queensland, Australia
4851940_tn?1385441629
Blank
jemma116
United Kingdom
1530171_tn?1418143903
Blank
TheLightSeeker
London, ON
10175413_tn?1427173851
Blank
Ekkiemom
Somewhere, CA
1780921_tn?1416842066
Blank
flipper336
Chandler, AZ