Aa
A
A
Close
Avatar universal
Begging for help!!!
I have a 23yr old with ORO FACIAL DIGITAL SYNDROME. For the past 2 months he has been having "seizure" like activity only in the morning while eating breakfast.  He feels this episode coming on and is able to tell me.  His jaw tightens up, unable to swallow, has involuntary swallowing (vagus nerve?), drooling on one side.  These episodes can last from 10 mins to a few hrs. During the worst episodes he stares off into space with his eyes rolled up in his head and they are very bloodshot with him vomiting at the end.  Had an EEG done (Normal) with a CT scan done in the ER with bloodwork (both normal) during one of these worst episodes. Docs had no clue what it was.  His nuerologist is at a loss also..We are away till SEPT so I am sure he will run more test when we get back. He presently takes Ritalin La 40 mg daily and Risperdone 2 mg nightly.  Hr has been on these meds a good 15 yrs or so.  Any thoughts???  It is very frustrating to see him go through this. Some components seem behavior but stepdaughters (one's a nurse and the other a behavior specialist) who have seen these episodes think it is medical.  He has never been one to look for attention etc.  HELP!!!
Discussion is closed
Cancel
0 Answers
Page 1 of 1
A
A
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Undiagnosed Symptoms Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1463449675
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top General Health Answerers
144586 tn?1284669764
Blank
caregiver222
1415174 tn?1453246703
Blank
mkh9
CA
Avatar f tn
Blank
Gemfly
363281 tn?1353103243
Blank
SassyLassie
Nelson, New Zealand
1530171 tn?1448133193
Blank
TheLightSeeker
London, ON
1340994 tn?1374197577
Blank
Caryopteris
Raleigh, NC