Can Anyone Help?

[WinfieldScott]

I've seen 3 primary care doctors, two in ID, a cardiologist, and an oncologist. Hopefully someone here can help. I have the following symptoms:

-Swollen and tender cervical lymph nodes (8-9 months)
-Joint pain without inflammation
-Nerve pain in all extremities
-Difficulty breathing
-Random muscle spasms
-Eye floaters
-Oral ulcers
-Reoccurring sore throats
-Brain fog
-Random lighheadedness
-Anxiety
-Random panic spells with facial flushing


I had an excisional biopsy of a lymph node...no lymphoma. CBC shows no abnormalities. Normal thyroid function. Electrolyte panel was normal. Normal kidney and liver function. All vitamin ranges were normal except D which was quite low. Wester blot for Lyme is IgM negative, IgG positive at 23/41 only. I have had both Lyme and Mono some 15 years ago. Bartonella, Babesiosis, Anaplasmosis...all show negative. 24/hr holter monitor showed random episodes of brady and tachycardia (36-168).

Any thoughts?!

[TheLightSeeker]

Hi WindfieldScott.


You may want to check out  Dr. Garth Nicolson who's an expert in the field of pathogenic infections and has been a contributor in this forum. (you can do a search for this using the search engine of medhelp on the top of this page)
You may also want to ask your cardiologist for a blood volume test.
Average red cell mass to body weight is average 30ml/Kg.
(normal range 25ml-35ml/Kg)
If the test shows over 10% less than the lower range it is indicative of an
underlying pathogenic infection, like Mycoplasma.
I'm sure if your blood volume was down by a pint or more because let's say an injury from an accident, then this would be taken very seriously,right?
Ask the cardiologist to have another look at the wave patterns
or get a copy of it, familiarize yourself with ECG patterns and it will be easy to spot the irregularities.
Did  the ECG Holter test show any T-Wave abnormalities like instead of Peaks, there would be Valleys and Inversions? Can you possibly find out ? Usually moderate PVCs are of not a big concern.
Most Cardiologists don't look for this and has nothing to do with voltage and with normal voltage ranges, they miss the abnormal pattern that indicates that the blood in the left ventricle is not being pumped properly through the aorta for distribution around the body.
Your heart arrhythmia & symptoms are obviously real, not in your head and there's a possibility of scarring on the heart tissue starting, if pattern is as suspected.
This is consistent with most Mycoplasma infections and co-infections,
usually the underlying causes of FMS, CFS and other similar conditions.

One more thing you may want to ABSOLUTELY rule out is low thyroid function. I know you mentioned your thyroid function was tested fine!
You can do on your own Dr. Barnes Basal Temperature Test.
Just follow the online instructions precisely. It should give you an accurate enough indication of thyroid function, barring any active infections.
To confirm this after, you need Free T3, FreeT4 and Reverse T3 testing.
Do not accept standard tests TSH, T3 & T4, as they do not indicate cellular
thyroid function, only serum levels!
This is important because low thyroid function can totally affect the ability
of your cells to repair and heal.

Oh, one more. Deficiencies!
Have you had your tissue magnesium levels checked?
If not, a hair analysis for minerals is suggested(not serum testing!)
Also your B12 Methylocobalmin (bioactive form) levels should be 500pg/ml or more and you need an MMA test for this.
Neurological symptoms have been associated with levels below 500pg/ml , even if "normal" lab ranges in N. America are below this.

How about your D3 levels?  How low are they and what is being done to correct this?  Is it possible you have Vitamin D resistance?
Vitamin D is one of the most important hormones in your body.
Nearly every tissue and cell type in your body has receptors for vitamin D.
There are numerous studies which have shown a vitamin D deficiency is associated with an increased risk of a great number of diseases!


I hope this helps, however, my comments are not intended as a substitute for medical advice.

Let me know if you need any more details.

Best wishes.

Niko

[WinfieldScott]

Niko, thank you for the help! I will be sure to look in to each of your suggestions.

Best Wishes!

[PaintingLife]

Did you get thyroid checked? HIV? HEP A, B AND C?  CBC blood? blood pressure? cholesterol? If you are a woman see a gynocologist and get a PAP test done. try those tests

[WinfieldScott]

Thyroid normal, HIV and HEP negative, CBC normal, BP and cholesterol were both very good. Im a guy, no pap for me! Lol

[JohnnyRocket244]

There are many vascular vein compression syndromes of the abdomin that will cause all of these problems. They are not very well understood by doctors so they are rarely diagnosed but fairly common conditions. One that I have is May-Thurner Syndrome. Another common one is Nutcracker Syndrome. I had many of the same problems you're experiencing for the past 2 years. It's only by accident the doctor discovered I had May-Thurner as he was doing another vein procedure. Within 24 hours of having a stent placed at the compression site all my problems dissappeared. Unfortunately all doctors know about These conditions are if you have a blood clot and your legs swell up but they can literally cause any problem in the body. This is due to collateral veins that develop to carry blood flow back to the heart. At the blockage sites of these disorders, collateral veins carry the blood most often left to right across abdomin and pelvis causing compression and displacement of organs along the way. Veins are also pressed against the spine further complicating things and causing pain all over the body. I could write a whole lot more about these but I would get checked for May-Thurner and Nutcracker Syndrome as they are the most common ones. Private message me if you want more info.

[WinfieldScott]

Thanks for the suggestion! Both were ruled out after seeing a vascular specialist.