DO I HAVE LYME?- nightmare!

Question

I am a 23 year old ex-waitress whom has been suffering with pain for years. Growing up, and up until these two past years, i was a hyperactive person with ADHD. If you asked anyone to describe me most of them would literally say, "she cant sit still". However I have had back pain and pain in the legs and knees for over 5 years now, but because I was a waitress I always just related the pain to "always being on my feet". In December of 08 my doctor, an internist I've seen for years, suggested she check for Lyme. I remember going for a routine visit to get my prescription for my ADHD (which i also assumed may be the issue since i had started taking it in October of 07) and I mentioned to her that I could no longer lay on my sides. I couldnt and still cant lay on them for more then a couple minuets without them hurting (and I take pain well) Also I had been feeling different, mentally and physically. I thought i was fine and everyone kept telling me I was fine. She prescribed me to Doxy and told me to take it for a while and then she would test again. I didnt follow her instructions and took it whenever I remembered. Blood work came up negative again. By this time I was progressively declining. I went from working a 40 hour work week to working not even twenty hours a week. I was always tired. I was going crazy, having weird thoughts, intense back pain, i was diagnosed with carpal tunnel in both hands severely which led to frequent cortisone shots, my feet started getting numb, I began having anxiety attacks, I would get goose bumps and hot and cold sweats and that isnt half of what I felt and still do feel. After taking the medicine the symptoms got worse before they got better and when we tested the 3rd time, in June of 09, at which time she said it was positive. It was a clinical diagnosis which led me here. Her basis of diagnosing Lyme, to my knowledge, was strand IgG p.41 present . Since then I have stopped working and have been on a strict regimen. Due to the high amount of antibiotics without any real proof many people suggested I see a specialist and I saw many. The last specialist I went to told me to find a new doctor and the people with an attention deficit disorder (in different words) tend to dramatize and create issues, practically that I am crazy and so is my doctor and to stop taking the Doxy immediately. I thought I would feel better, but I felt worse because I knew something was wrong with me and now after this doctor's opinion no one will understand or believe me. He gave me a referral for an ELISA and a Western Blot Test. When these results came back, in October of 08,(4 months after the first detected strand) it was negative again, but yet another strand was present and that was IgG p.58. Both test also red flagged my hemoglobin and hematocrit levels which also increased within the four months. I went to other doctors, one which is an ophthalmologist that specializes in Lyme. She prescribed me to a drop because she said that I had inflammation in my eyes. She also indicated, as did my doctor, that I most likely had Chronic Lyme which went untreated for years. However, I was not getting much better so I started antibiotics through IV. After two weeks much of the mental aspects improved, but I still had pain. I am now almost done with the second cycle, or fourth week, of the IV antibiotics and am feeling a lot better. I just want to make sure it is not all in my head like the doctor said and that I am on the right path. PLEASE HELP! I might all test were done through Lab Corp and I feel that I may go insane because as I research abnormalities in these present strands I come up with many illnesses with a lot of the same symptoms so I am nervous and going crazy that it may be something more life threatening. Thank You!!!!!!!!!!!!! A good answer would be the best thing anyone has ever given me in my life!

This discussion is related to lyme disease, or cancer.

cmleto · Answer

Thank you for your wisdom however I have been getting B12 shots for the past, almost, month now along with the antibiotics. I am feeling a lot better, but now that you said that I am thinking maybe the B12 is helping me more then the antibiotics. Thanks

KMathurMD · Answer

Hi 
Welcome to the MedHelp forum!
Well, the symptoms could be due to Lyme Disease. Also since you have been having pain for so long, check the status of Vit D level in your body and also Vit B12. Chronic deficiency of these can also cause similar symptoms.
Hope this helps. Take care!