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Does anybody know what is causing my ongoing vertigo?

So for 3 months straight now I have had severe dizziness that is affecting my everyday life and is making me very depressed.

It all started one day when I got a really bad cold, the cold lasted around a week and as it started to clear up I began doing activities again. On a day where it had virtually cleared I woke up, got in with my day as usual and suddenly in the afternoon became quite unsteady. I didn't think much of it and just had a lay down and hoped it would wear off. The next day I woke up feeling very groggy and weak, and the dizziness returned come afternoon time but this time the room was spinning frantically.

That night I fell over when getting out the bath and my partner had to help me to the bedroom, I went to A&E because I could barely move and was told I just had a virus and if I drank 2-3 litres of water with honey in it then it would be gone in a day or 2. Oh how wrong he was.

3 months on and not a single day goes by where the room doesn't spin. I'm almost permanently dizzy and I can't take it. I'm a 20 year old mother of 2 young babies so I'm missing feeling normal. I struggle to play and go out with my kids and it's getting me so down I cry most days now.

The doctor referred me to an ENT but my appointment isn't for another 4 weeks. I'm so scared as I haven't even been told what it is. I was given tablets but nothing I've tried has helped much at all. I'm beginning to worry that I have something like a brain tumour or dizziness that will never go away. I'm scared that this is now how I'm going to have to live my life.

My typical day is waking up and feeling weak and slightly groggy, fatigued and lethargic. I don't always have dizziness in the morning. I then begin to feel better after a few hours and have about an hour where I feel somewhat normal, then the dizziness kicks in when the afternoon approaches and gets worse as the day goes on. I find my dizziness is almost unbareable when I look down or change my child's nappy, the room feels almost like it's bouncing if I look down. I find if i look around and move my head a lot the dizziness gets worse. I feel better whenever I lay down. Come the evening I get a lot of pressure in my head and mild headaches and it's so unbareable. I feel like my anxiety is making me a lot worse and petrified it's something serious. Can anyone enlighten me? Has anyone every had this? If so did it ever go away? I'm scared that if it's not something life threatening then it's going to be something I have for the rest of my life and in all honesty I've never been so miserable. I don't go out and I'm scared to socialise. It's really ruining my life. Any help I would appreciate so much!
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Avatar universal
I had this a few years ago. I did a tilt table test and turns out it was a small grain of calcium deposited in my cochlea. It apparently happens if your immune system becomes weakened and can throw off your balance. I wound up getting prescribed something for it and the vertigo went away within a few days. It might be worth asking about?
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