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EEG Results
Hey everybody, Just an update. Saw neuro for results on EEG today. Shows that I am having complex partial seizures - I have epilepsy. I still have to go for more tests - but that is the diagnosis....so atleast I can get that part of me taken care of! I have the endo appt on Friday - hoping that this will be the week all is found out! But I know that Friday will end up being consultation - So, for now, I know what's happening! Just thought I'd let you all know! Take care to all of you - I am keeping you all close in thoughts and prayers!
Charley
Charley
MY DAUGHTER HAS AUTISM, LANDAU KLEFFNER SYNDROME. SHE EXPERIENCED A TYPE OF SIEZURE OR EVENT WHERE SHE APPEARED TO BE DRUNK OR ON DRUGS GLASSY EYED NO BALLANCE DIZZY AND WENT UNCONTIOUS. WE TOOK HER TO HOSPITAL HER EEG WAS NEGITIVE EVEN DURING ANOTHER EVENT! HAS ANYONE EVER HEARD OF THIS TYPE OF SIEZURE OR EVENT? HAS ANYONE EVER HEARD OF A SEIZURE THAT DOES NOT SHOW UP ON A EEG?
Hey what a finding ! Is that the first eeg youve ghad Charley. At least your getting somewhere I,m really pleased for you. It sort of validates you doesnt it. Once they get your meds sorted for the seizures you will at least get them controlled. My son has grandmal seizures so I know what there like . Hes always really tired after an episode so I can imagine what the combination of things are like for you. Take Care and good luck for the endo Friday. Its 34 c where I am at the moment so Im staying indoors too hot for me. Hope you enjoyed the wedding by the way. XXX Chris
I, too am glad that you have a diagnosis that you will be able to treat. No one is ever happy about being sick, but at least now you have an answer and can get help. Keep us posted about the endo. Hang in there.
Hi Charley the electric shocks you describe are one of my symptoms and yes they hurt I agree . I had a 5 min eeg 2 years ago but that didnt show anything up ? Really pleased for you though as Duchess is . Speak to you soon. ChrisXXX
Hey everybody,
It does my heart good to come to this forum and see people concerned for me and keeping me in thoughts. It means alot. I sometimes feel that my friends and family really don't understand - on the outside I look fine, ya know? I just feel like ****.
Hi Leslie, I would be glad to tell you about my experiences - and Yes, it is good to have a name. Mine started about a year ago with alot of neurological symptoms...numbness, tingling, temporary paralysis and a "buzzing sensation" on the inside of my body. This has happened alot in the middle of the night or upon waking up in the morning. Have also had this happen several times during the day. Sometimes, I have an electrical shock feeling in my arms and legs...it actually hurts. I had no idea that I was having "seizures" - I ahve always thought that people who have epilepsy had convulsions, etc. I had no idea that there was a milder form. I still have a lot ot learn about all of this, but doing so with enthusiasm! I don't know if that helps you or not. The EEG is not painful, etc. They glue some electrodes to your head and the whole test took about an hour. They will let you rest for a while (said the test goes faster if you are tired) and then they will ahve you do different things. I had to keep my eyes open while a strobe light was in my face and then the same with my eyes closed. I wish youluck with your EEG - keep posting and let us know how it goes.
DUCHESS & CHRIS , thanks guys for your support. I think of yall often and hope that you are doing okay. This was the second EEG I ahve had in the last year. There was one little spot on the last one that was questionable - with this one, there was no question. Also said that the little lesion on my MRI makes sense now. So, finally getting somewhere. Anxious about appt with endo on Friday - but ready for it! Take care everyone!
LESLIE, forgot to mention that the paralysis lasts for around 30 seconds to as much as 2 minutes. It is very scarry. I have a great sense of impending doom or danger. I read in the pamphlet she gave me yesterday that this is normal. Google complex partial seizures. The best info I found was on eMedecine (i think). Hope this helps!
It does my heart good to come to this forum and see people concerned for me and keeping me in thoughts. It means alot. I sometimes feel that my friends and family really don't understand - on the outside I look fine, ya know? I just feel like ****.
Hi Leslie, I would be glad to tell you about my experiences - and Yes, it is good to have a name. Mine started about a year ago with alot of neurological symptoms...numbness, tingling, temporary paralysis and a "buzzing sensation" on the inside of my body. This has happened alot in the middle of the night or upon waking up in the morning. Have also had this happen several times during the day. Sometimes, I have an electrical shock feeling in my arms and legs...it actually hurts. I had no idea that I was having "seizures" - I ahve always thought that people who have epilepsy had convulsions, etc. I had no idea that there was a milder form. I still have a lot ot learn about all of this, but doing so with enthusiasm! I don't know if that helps you or not. The EEG is not painful, etc. They glue some electrodes to your head and the whole test took about an hour. They will let you rest for a while (said the test goes faster if you are tired) and then they will ahve you do different things. I had to keep my eyes open while a strobe light was in my face and then the same with my eyes closed. I wish youluck with your EEG - keep posting and let us know how it goes.
DUCHESS & CHRIS , thanks guys for your support. I think of yall often and hope that you are doing okay. This was the second EEG I ahve had in the last year. There was one little spot on the last one that was questionable - with this one, there was no question. Also said that the little lesion on my MRI makes sense now. So, finally getting somewhere. Anxious about appt with endo on Friday - but ready for it! Take care everyone!
LESLIE, forgot to mention that the paralysis lasts for around 30 seconds to as much as 2 minutes. It is very scarry. I have a great sense of impending doom or danger. I read in the pamphlet she gave me yesterday that this is normal. Google complex partial seizures. The best info I found was on eMedecine (i think). Hope this helps!
Hi Charley, Would you mind telling me about the seizures, I am scheduled for an EEG on Friday to see if that's what I've been having. (You replied to my past posts, thank you!) I am glad you finally know about the seizures/epilepsy, & you can treat that at least. But I'm sorry that you are going through this too, it's not like you aren't going through so much already, but I think it's good to hear a "name" to your symptoms. It's a relief in a lot of ways, huh? So if you don't mind, could you explain how you feel when you have the siezures? I know everyone is individual, but I want to compare what I'm feeling to someone's own experience.
Hope you're feeling better soon!
Leslie-Hityty
Hope you're feeling better soon!
Leslie-Hityty
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