Endometriosis - sharp breath taking pains non stop bleeding

[PreMedPretty]

In Nov. 2011 I underwent a diagnostic laprascopy and found that I have endometriosis. The doctor burned the tissue away and I continued on a birth control pill known as "Amethyst." At the end of January I had a terrible bout of bleeding despite Amethyst supposedly halting my periods altogether. Then from February on until the end of March it was non-stop bleeding. I hardly had any breaks at all in the bleeding and it would range in heaviness. It could be light spotting to actual period like flow and clotting. I went into the ER one night and they did a vaginal ultrasound and found that I had a few small fibroids, they gave me pain meds and told me to follow up with my family doctor or a gynecologist. I consulted with a different gynecologist and was told she didn't believe that I had Endometriosis rather she thought that I had its cousin, Adenomyosis. She wasn't able to pull up any of my medical records and she did no testing aside from a quick pelvic exam. So I started a new b/c Yaz. I stopped Yaz because it made me feel funny and decided to deal with it by taking loads of pain medication every time my period came. Now, the last year and a half I have been experiencing pelvic pain when I sneeze or cough, if I turn or twist a certain way, when I stretch.... it's a very sharp, breath taking pain for a few seconds and then discomfort for a few minutes. Lately though it even hurts out of the blue if I'm just walking - not often but it happens. And I am urinating quite frequently but there is no noticeable pain when I urinate. I don't know what's going on - my current gyno doesn't seem to be much help. She wants to get me on Lupron but she hasn't done any tests and last I saw her she didn't have my medical records yet. I see her again in a few weeks for a follow up from when I saw her in May. Any doctors, nurses, or patients have any clues or insight?

[Invida]

Hi. :) I'm sorry you're having this pain without a helpful gynecologist to treat you. How could she determine for sure you had Adenomyosis instead of endometriosis without doing an ultrasound? I'm not a doctor, but it seems to me like she should have done testing. I have similar symptoms that my gynecologist doesn't seem that concerned about. I have mucus and blood tinged discharge all the time. Not from endometriosis, that I know of, but I do have a thickened lining and very abnormal bleeding with large ovarian cysts. I hope your doctor will be more involved the next time you see her or maybe you could find someone else?

[PreMedPretty]

I did want to add that when I urinate and I wipe there's like a mucus like blood tinged discharge this has been present since 2012. Mucus discharge only seems appropriate if you're pregnant or just given birth.

[TheLightSeeker]

Sorry I submitted accidentally.

6. Estrogen dominance  could be corrected simply by supplementing transdermally with a 2% NATURAL Progesterone cream, starting with 2-3 times daily, about half teaspoon each time, rubbing it on smooth parts of your body, 3 weeks before your period and stop when your period starts.

There are a lot more considerations and possibilities, nonetheless, the aforementioned make sense to me and I hope they resonate with you.

I hope this information helps, however, I'm not a medical doctor and my comments are not intended as a substitute for medical advice.

If you need details, please post again or if you prefer, you could pm me.

Best wishes

[TheLightSeeker]

Hi PreMedPretty.

I feel so bad for you, reading your post, not only with all your pain and suffering, but the way you've been tossed around in the medical system without much success at all!

I'm definitely an "outsider", as I didn't make your... short list, but I hope you will consider reading my comments.

1. Endometrial ablation has a high rate of recurrence, after the procedure.
2. Endometriosis and Adenomyosis can co-exist.
3. They "normally' affect females over 30.
4. Many of your symptoms are consistent with  both conditions.
Heavy bleeding is more common with Endometriosis, however this does not
rule out Adenomyosis.
5. Uterine fibroids causes are hormonal, genetic, or most likely both.
Genetic factors can get activated by hormonal imbalances, such as
Estrogen dominance, a likely suspect in Endometriosis, Dysmenorrhea
and Uterine fibroids.
One of the most common patterns with estrogen dominance is excess estrogen in relation to progesterone, which is often too low.
6.