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Everyone says I'm normal or its in my head - help?

I've been to my GP about once a week for the past 6 months with an array of symptoms that she can't seem to diagnose. The head sensations started about 4 months ago right after a "spell" I had after taking anti-biotics. Here's a little back ground:
I have a 9 month old son (my first kid) and had to be induced because my blood pressure shot up to 180/120 when I was 33 weeks and 4 days.. I had just been admitted to the hospital 3 days before, with pre-eclamptic symptoms and was being monitored, and they knew they were probably going to have to induce me so they gave me 2 steroid shots to help his little lungs form more quickly, and 24 hours after the 2nd shot I was induced, and was also given magnesium sulfate to keep me from having seizures and to keep my blood pressure down. My blood pressure was going a little haywire for the next couple of days, but about 2 weeks after I had him, it went back into normal range. Other than the normal pain of having a baby, I was fine for the next couple of months. I had been on anti-biotics pretty much since I got pregnant for reoccuring UTI's, and even after I was pregnant, they just wouldn't go away. At one point, it started developing into a kidney infection, but I took more anti-biotics and it went away... and then about 2 weeks later it came back. That's when the "fun" started.
I took anti-biotics for the UTI, like normal, thinking it was no big deal. About 5 days into the cycle (she had me on doxycyclen), I experienced sever diarrhea, to the point where it was basically just water, extreme nausea, feeling as though I needed to throw up but I couldn't (i even tried at one point to make myself throw up, and i couldn't), my skin burned and itched on my arms and legs, I got really hoarse and my throat hurt a little bit, I was extremely lethargic, someone said my head felt really warm but I never had a recorded fever (i went to the ER and they said they didn't know what it was) I took benedryl to help me go to sleep, and thought I could be having an allergic reaction to the meds or something, but the next day my skin still itched and burned, and I still had the diarrhea and the nausea wasn't as bad, but I still couldn't eat a whole lot. After a few days it went away, but I started experiencing these weird head sensations. It feels like someone's pulling me down from the base of my skull and theres a lot of pressure, and the same in the front of my head around my nose, almost like sinus pressure. It also feels like someone's tickling my brain... I don't know how else to describe it, but it's the weirdest sensation I've ever had and I've had to keep myself from hitting my head to try to stop it. I've also had a lot of muscle weakness.. like after I carry something even slightly heavy, it feels like I just bench pressed 200 pounds. Same thing when I lean on my arm, my wrist feels like i've been lifting weights or something - not sure how else to describe that.
Also, the burning sensation goes all over my head now, and the pressure feeling is almost daily.
I thought it could possibly be due to Mirena (an IUD) and got it taken out, and while I was there my OBGYN said I had bacterial vaginosis, and prescribed -anti-biotics-. 3 days after taking these, the same exact episode came back, only WAY worse. I've been to my GP once this week and she ordered a bunch of blood test, I went to the ER and they ordered an abdominal ultra-sound for the extreme stomach pain that's now been added to the list of symptoms - everything was normal, a CT scan for the weird head sensations -normal, I went to a GI specialist the next day who ordered an endoscope for Friday morning (tomorrow) but in the mean time, I went back to the ER because I couldn't eat or drink anything without my stomach burning and having extreme almost muscle pain, as well as the severe, watery, diarrhea and the skin burning sensations. The ER doctor from the second trip ordered an abdominal CT with contrast and a bunch of other blood test, all came back normal, but said my white blood cell count was slightly elevated. I haven't been able to eat or drink anything in 2 days and now i'm at risk for dehydration. I have no idea what to do and neither do the doctors apparently.

other weird sypmtoms:
extreme dizziness/lightheadedness
my throat feels like the muscles aren't working right - like there almost stiff or swollen
my tongue feels like theres something underneath it, or holding the bottom of it
I get random muscle twitches in my legs, arms and side of my face and head
I feel shaky, and have started developing mild hand tremors every now and then
the back of my neck feels like the muscles are sore or stretched
i feel like my brain isn't doing things right - i've started using other words in place of words that I should actually use, i catch it, but it's weird (like skull for school, or granted for corrected)
I also feel disoriented or spaced out, and kind of feel an emotional distance or un-attachment from my son and husband
i get pains in my hand, arm and chest that my doctor dismissed and said it was nothing to worry about
-after drinking alcohol in July, my left arm started hurting pretty bad, and the next morning it felt as though the skin on my head wasn't attached (like there was water underneath it or something), and my arm and chest hurt.. my doctor said it was a panic attack and I took a Klonopin and went to sleep, I woke up groggy but the symptoms went away..
a lot of fluid on my ears that wont go away
i have trouble focusing on things - especially things that are close up
Sorry for such the long post, but I'm freaking out. I'm only 19 and don't feel as though any of this should be happening

medical history:
pre-eclampsia with pregnancy
panic attacks/anxiety disorder
depression
juvenile rheumatoid arthritis that went away after 6 months
Epstein Bar syndrome (mono) for a year (13-14)
acne - took accutane cleared it, and after i got pregnant, acne came back



Anyone have any advice?
5 Responses
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Avatar universal
Thanks for the posts.

geminigirl: Yeah, that's what me and my mom suspected, but my GI doc isn't agreeing with us. He said that lawyers are going sue happy and seem to think that accutane isn't causing the problems that everyone's saying it is.

Minky: My mom thinks it's part of the reason too. I just know all of the stuff that I've tried in the past doesn't work or makes me feel detached. I'll try though.
Helpful - 0
Avatar universal
The thing that caught my eye was right at the very end of your post.  Accutane.  There has been a LOT of talk lately about Accutane causing severe gastro problems that sound a lot like what you've been experiencing with that.  These problems, apparently, can show up YEARS after having taken the Accutane.

I don't know that the Accutane could explain ALL of your symptoms, but it very well may explain the GI issues and I would definitely mention it to and ask your GI doc about it.  You could probably also read more about what I'm talking about online - I'm guessing google something like Accutane lawsuits or Accutane GI problems.
Helpful - 0
1468774 tn?1286542443
Sounds like you have postnatal depression from the symptom's you have described ,when i had it i had very weird symptoms to that i though i was going mad and something was seriously wrong with me and i was going to die ,as you have said when you took a anti anxiety tablet although you were groggy the symptoms disappear this happened to me ,go and see your GP and explain how you feel and suggest it could be this and hopefully this time by getting to the bottom of the problem ,you can help yourself and the GP could prescribe a short term anti anxiety medicine which could help alleviate the symptoms and help you get back some control .
Helpful - 0
1468774 tn?1286542443
Sounds like you have postnatal depression from the symptom's you have described ,when i had it i had very weird symptoms to that i though i was going mad and something was seriously wrong with me and i was going to die ,as you have said when you took a anti anxiety tablet although you were groggy the symptoms disappear this happened to me ,go and see your GP and explain how you feel and suggest it could be this and hopefully this time by getting to the bottom of the problem ,you can help yourself and the GP could prescribe a short term anti anxiety medicine which could help alleviate the symptoms and help you get back some control .
Helpful - 0
Avatar universal
Oh! and my eye feels like its drooping all the time, even though it's not, and my face feels the same... like it's drooping, even though it's not drooping at all. and it sometimes feels like theres cotton inside my cheeks or something... but just one side. and it feels like I constantly have to yawn. my jaw sometimes feels like it's locking up.. just more random stuff. :(
Helpful - 0
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