Greater Occipital Neuritis and brain inflammation

[cross45]

I am a previously healthy female, aged 60. On May 29, 2008, I seemed to have a mini-stroke. Immediately afterwards I began having pain just behind and above left ear.  There has been a progressive deterioration of my motor functions, but the problem comes and goes.  At its worst, I can't hold my head up (it shakes and lies on my left shoulder); my gait is terrible (left toe drags, recently my knees have started to give way), I get a bad shake in my right hand, or both hands curl up into fists; speech is slurred; eyes are slow to follow stimulus; short term memory is terrible; feel very tired and weak.  The original headache has been constantly present but not very severe.  The worst motor symptoms occur after riding in a car.  My primary care physician diagnosed greater occipital neuritis and put me on 500 mg Naproxen 2X/day.  Taking this caused all my symptoms to miraculously disappear, but I had too many adverse reactions to the Rx.  They switched me to Ibuprofen 800 mg 3X/day, but it gives me bad asthma attacks, so I've got myself down to 500 mg 4X/day.  This gives me a few more good days, but am still very sick. I can tell when the anti-inflammatory is starting to wear off when my eyes roll back in my head a lot.   Am getting ready to see 6th doctor.  Have had CT scans with and without dye, MRI w/ and w/o dye, ultrasound of carotid, lumbar puncture. Loads of blood tests for every possible pathogen and thyroid.  The only abnormality is a lot of spots on brain.  First neurologist called it "multiple infarcts".  Second neurologist said they are probably all just "UBO"s (unidentified bright objects...probably artifacts of the test).  
I really need help!!! Can't drive, have to spend most of every day in bed.  Am largely dysfunctional.

Thanks for any help you can give.
Susan

[IrishB]

Hi, I hope you are feeling better. I am writing to ask if you have had any progress with your condition as my mother is in a very similar situation.
Thanks,
B