My daughter who is 16 has been told her ck levels areat 800 and should be at 200 . Shehas lot's of headaches and is always tired ...We are seeing a specialist soon but what should I be worried about.The test for muscular dystrophy was fine, that does not seem to be the concern....we were trying to work out today and she had really bad chest pains!
Thanks for writing to the forum!
Please see that your daughter does not exert until she has seen a specialist. It could be really dangerous.
“When the total CPK level is very high, it usually means there has been injury or stress to the heart, the brain, or muscle tissue. For example, when a muscle is damaged, CPK leaks into the bloodstream. Determining which specific form of CPK is high helps doctor's determine which tissue has been damaged.
This test may be used to:
* Diagnose heart attack
* Evaluate cause of chest pain
* Determine if or how badly a muscle is damaged
* Detect early dermatomyositis and polymyositis
* Tell the difference between malignant hyperthermia and postoperative infection
* Reveal who carries muscular dystrophy (Duchenne)
The pattern and timing of a rise or fall in CPK levels can be diagnostically significant, particularly if a heart attack is suspected.”
It is difficult to comment beyond this at this stage. Do try for an early appointment. You should consult a cardiologist too. Please let me know if there is any thing else and do keep me posted. Take care!
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