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Avatar universal

I think I have, Hodgins disease...

Hi everyone,

I went to the get my regular checkup along with doing blood tests.  The doctor informed me that I had elevated liver enzymes (ELE).  I was reading up on ELE and found a long lists of possible causes from hemochromtosis to advance liver failure...

I always thought that it might be hemochromotosis because in past blood tests, my iron levels had been above average.  I did another blood test after my recent one and the doctor never mentioned anything about my iron levels so it might, might not be.  I am actually hoping it is.

Lately, however I have noticed that when I raise my arms over my head, my underarm does not cave in, but insteads sticks out.  So searching the internet I find that it could be Hodgins disease which also can relate to ELE.  

My question are:

1) This is a weird question, so bear with me.  It is normal to underarms that doesn't cave in?  I have looked at pics on the net to some people at the gym and they all seem to have caved in underarm.

2) Is anyone else in this situation?

3) If this is Hodgins disease, is there a non-surgical way to find out?  
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Avatar universal
I'm a 49 year old female who have had horrible muscle pain all over my body for the past 3-4 years.  I was told I have Fibromyalgia which is disorder characterized by widespread musculoskeletal pain, fatigue, and tenderness in localized areas. However, my pain has gotten worse in the past year and when I get up in the morning a can barely walk. Now I have developed some rashes in my underarms with painful bumpy pimple like that goes and come.
I don't know if its related to an infected lymph node or something else going on in my body.  Could it be cancer or hodgkin disease? would someone help find answers so I can obtain some quality of life back.  Thank you, Angie
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Avatar universal
I have a friend that back in aug  she  was told she had hodgins cancer stage 4 and she never had anything before then to point to cancer and now the other day the gave her 2 weeks to 6 mnths to live shes done the chemo and ice and was gonna go for the bone test with the chemo but she got someinfection they dont know what or how but now they are saying she cant have the bone mareal test with the chemo and just sent her home to die now with pain meds to keep her out of pain,,, I just meet her about three weeks ago and my heart goes out to her and i just feel helpless like theres got to be something out there she can still try or do if anyone can help please email me with how to search or how to find things to help her,,,***@****,,im putting my email in here because i tend not to beable to find my postings for answers when i visist back to these website please anyone if you can help me please email me again ***@**** thank you
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Avatar universal
Just so you know, Ibuprophen is NOT metabolized by your liver, it is matabolised by your kidneys. Your raised enzymes are not related to Ibuprophen for that reason. Obviously it could be something else causing it, but it isn't the Ibuprophen.
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Avatar universal
serenemale,
                 Sorry to hear that you're not feeling well. I have some information to share with you that you may be able to ask your doctor. I tell you my symptoms first: enlarged lymphnodes in my neck, armpits, and groin (these are known to be painless if there is disease present) at least that was my experience. I had night sweats, extremely itchy skin, pale skin, stomach problems, fatigue (usually occured around te same time each day) low-grade fever, and weight-loss (about 10 lbs). I also had a migrane headache and a stiff neck just prior to diagnoses.

Ask your doctor if he can do a Sed-rate (which is known to be elevated with Hodgkin Disease {HD} but indicates inflammation in the body too). Naturally a cbc with differential will tell you what's going on with your wbc's. If you're having amy problems breathing you may want to have a chest x-ray. There is so much more but I think you will benefit more from this website that I spent several years on. It's www.hodgkinsdisease.org. There are a lot of great people on that list and they will help you figure out what's going on with you. Good Luck. Write back if you have anything else to ask.

                                                              
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Avatar universal
Just so you know, Ibuprophen is NOT metabolized by your liver, it is matabolised by your kidneys. Your raised enzymes are not related to Ibuprophen for that reason. Obviously it could be something else causing it, but it isn't the Ibuprophen.
Helpful - 0
155056 tn?1333638688
There are numerous reasons why your liver enzymes are high....I went for a while with strangly high enzymes as well, and I am an OvCa survivor who was somehow trying to relate it to the cancer....no, I was taking alot of Advil....the doctor didn't ask if I was taking Iburophen so it took a while to piece it together.

I do not know all the signs and symptoms of Hodgkins (I do have friend who had stage 4 when we were 15, we are now 45).  I do not know how a Hodgkins diagnosis is made but I think that they can tell "something is wrong" based on white blood cell count and then look further.

It is more then your armpits not caving in....you would feel swollen glands, there would be pain and discomfort.

Please discuss your fears with your doctor.  
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Avatar universal
Oh yeah, I failed to mention, I don't have Hepatitis A, B, or C.

Please help.
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