Im desperate for a diagnosis, can anyone help me?

[Ktothill]

Hi, I am a 24 year old female from New Zealand, working in the mines in Western Australia. I first got sick in December last year when i was on my first 2 week roster in the mines. I had aching muscles, cold sweats, faint episodes, nausea and was so fatigued i could not leave my room. I had random vomiting, but it was not as consistent as my other symptoms. My supervisor took me to the local GP the next day, he saw me very briefly, prescribed me a strong antibiotic for a suspected virus and sent me back to camp. The antibiotic worked and i thought nothing more of it. Then at Christmas time back in New Zealand with my family it came on again. As well as all the other symptoms i had all over body tingles to the point where my hands cramped up so tight for about a minute my sister had to hold my water bottle to my mouth....I didnt bother seeing a GP as the symptoms wore off within 1 day. Then it hit again in late January this year when i was back in the mines, a different mine camp and site then the one i was on in December last year. It hit again, once again with all the same symptoms, only this time i had extremely swollen glands and i blacked out while walking back to my room. This time i had 4 days off work before they flew me back to Perth to see my GP here. My GP here immediately took bloods. I tested weakly positive for ROSS RIVER FEVER and my blood memory tested positive to having GLANDULAR FEVER at some point in the past. I went home happy that i had a diagnosis. A few days later i went back for follow up bloods and ironically i tested negative for ROSS RIVER FEVER...feeling baffled, i asked the dr to take more bloods in a weeks time and test for more things. So weeks on i had had more bloods taken. They very next day i was visiting a cafe where i used to work and i completely blacked out, smashing my lip then my head hard on the ground. I have no memory of the ambulance ride or getting to Perth Royal Hospital. The first memory i had was waking up in ED with my partner trying to calm me down. According to him, i had a goldfish memory for almost 4 hours, that i had vomited many times in ED, that i was uncooperative and upset and that only he could get me in my gown or encourage me to have a drip put in my arm etc. The Drs put me on the highest dosage of morphine as my muscle aches and tingles were so intense. I had a CT, MRI and Kidney scan, all came up clear. My bloods in hospital only showed a increase in white blood cells and that was it. I was discharged after being in isolation for 2 days. I since had bloods test positive for a chest infection...My Dr does not seem motivated at all to get to the bottom of it and while i have not had a relapse in 3 weeks he hasnt even touched base...Still i have the same symptoms, in a much milder form but never the less, im still not right and i dont know what is wrong with me. I have had 2 months with no work because of this and my confidence has been shot. Im so scared of blacking out again, this time not being around people i know. Please if anyone has any ideas or websites i could check out, i would really appreciate it. Kirsty

[Ktothill]

Thank you so kindly for your reply, i have now booked in with a specialist in 2 weeks time.

[Wanda1369]

you need to see a diagnostician at a teaching hospital -- not a GP -- your GP can probably recommend one.  is the area prone to Lyme disease?  it can take 6 months for the blood test to be positive.  sarcodosis is also a possibility based on your description.  good luck.