Hi, very frustrated right now. In the last week, I have had 2 hospital visits, 2 folos with doc and 1 upper GI (slight gerd), Ultrasound ab (normal)and lots of CBC draws. Last Thursday, it was a hot day, and I noticed I was sweating more than normal with simple tasks. I had severe menstraul cramps that day and took several midol..Bloodwork for stomach pain indicated low iron and potassium, so I also took a potassium pill, multivitamin, and gatorade often during the day. After dinner, of fish and veggies, 2nd fish entree of the day, I started to feel numb in low left forearm to hand..From that point on, I had a little nausea, and my legs were going fast. A tickling, tingling sensation from my hips to my toes began, and it felt like I had the life draining out of my legs and could barely stand...I had to keep moving my legs as the sensation was unbearable, and i felt faint. I drove home while my mom pounded my legs to get circulation going (she doesn't drive and is handicapped). By miracle, I made it home,but had paramedics take me to hospital, as I thought I had heatstroke or worse.
Docs couldn't figure the cause and just called it perpheral neuropathy, which my rheumy disagrees with, but doesn't have the answer either. I haven't been able to get out of bed until now, 4 days later..When I stand, sit or lie, I get the sensation back. I can't drive right now, and am so frustrated that I have no answers yet. Most of my tests looked norm, just had a lyme disease test taken, no word yet. I have a sed rate of 34..which I may have anklyosing spondylitis, unofficial.
What testing did this DR do to call it peripheral neuropathy.this usually is done with a EMG/NCS.
PN is extremly painful along with the numbness and tingling.At the extent you have it it would happen when laying down.Did they give you any meds for the PN.
I would push for a referral to a neurologist,if this is PN its neurological and he will know how to treat this.
Thank you! The ER doc only took down notes from what I told him, and he did small tests on my reflexes to see how they responded, and after my insistance took a regular back xray (normal)other than some bone changes from aging, which I am told is normal. I had a full CBC done 2x during this time, only showed low iron/potassium.
I folllowed with my rheumy who was clueless, and he always writes it off as something viral to go along with my sed rate of 31. Rheumy has diagnosed me with Spondylarthropathy 3 years ago, but I have no markers other than sed rate to confirm this and previous tailbone coccyx pain, stiffness, and hip stiffness.
I do plan to get a 2nd opinion after this ordeal is resolved.
I had major rib pain and gastritis 3 weeks ago and rheumy insisited I take MEDROL for my rib pain as he said it related to my inflammation and SA, which I agreed, and from the 3 rd dose of this I started to have shocks in calves then spasticity problems, then finally leg parathesia, weakness, and inability to sit, stand or lie for too long.
If MRI's don't show anything, I definitely will see a neurologist. My leg issues do not have pain now, just a feeling of fullness, numbing sensations, and a tickling sensation that can cause me to go nuts trying to stop it. I am unable to drive at this time, as my ankles go completely dead and have no power to press on the gas or brake.
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