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Multiple Symptoms, no diagnosis
by aprilwagner1, May 11, 2009 01:23PM
About 3 months ago I had skin sensitivity ALL over my body (like my skin was a giant bruise), my joints were aching severely.....every joint I can think of, and I had extreme fatigue and exhaustion. I also have cystic fibrosis and I've consulted with my physician and all he can say is it MAY be Arthrosis....something CF-ers experience regularly. I've never hurt like this. I didn't even think I could get through the day and care for my 1 year old daughter. I've looked into Fibromyalgia and the symptoms seem to fit. It's hard to diagnose though and I just wanted to see what others may have to suggest. With the Arthrosis diagnoses there shouldn't be the other sypmtoms with it, so I don't think that's what it is. My skin started hurting again last night and when I woke up this morning I was fatigued and my shoulder was killing me....in the ball and socket that is. Can anyone offer up any suggestions???
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Thanks for writing to the forum!
Whatever I need to tell you is well outlined in the following article. Please go through it and discuss with your doctor.
“Episodes of joint pain are well recognised in CF, usually starting after ten years of age, and occurring in about five to ten percent of patients (Lawrence et al, 1993). The commonest form of joint pain in CF is an arthritis which mostly affects the large joints, for example the knee, ankle, wrist, elbow and shoulder. This is sometimes referred to as CF associated arthritis. Episodes usually last less than a week but can be quite disabling. Acute onset at a young age is often sudden with widespread joint pains and general 'flu-like symptoms. Patients often cannot walk because of leg pains and just want to stay in bed. Sometimes the attacks are associated with high swinging fevers and skin rashes.
Most patients rapidly respond to non-steroidal anti-inflammatory drugs such as ibuprofen (Brufen). Short courses of prednisolone may be needed in a minority of patients. Occasionally more aggressive and potentially toxic treatments are necessary. These patients require the expertise of a consultant rheumatology with a special interest in cystic fibrosis. The arthritis follows a remitting and relapsing course. Symptoms mostly completely disappear between attacks. X-rays tend to show no abnormalities. Although in most cases there is no permanent damage to the affected joints some have progressed to an erosive arthritis with bone destruction.
A second form of bone and joint disease is called hypertrophic pulmonary osteoarthropathy (HPOA). It is usually found in young adult patients and has an insidious onset. Pain, which is generally mild at the beginning, may increase to a continuous ache. The clinical picture may vary from a minimally swollen joint to tender, warm and swollen joints resembling those seen in rheumatoid arthritis. Symptoms are often worse in cold weather.”
You can read more about this on this link: http://www.cysticfibrosismedicine.com/htmldocs/CFText/arthritis.htm
Hope this helps. Please let me know if there is any thing else and do keep me posted. Take care!