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Muscle Pain and Body Aches
What's wrong with me? Over the last two years I'm so tired I can't get out of bed in the mornings and all day and all night I have severe exhaustion no matter how much I sleep. I also feel depressed all the time and I have horrible muscle pain and body aches. I can be perfectly fine one day and the next day I wake up and my whole body aches for weeks. It's so bad I feel like I've been run over by an 18 wheeler truck. It's so bad that I can barely move and I'm miserable. Then it will suddenly go away just as quickly and mysteriously as it came on. I also can't do anything physical now without getting severe muscle pain. Just a walk around the supermarket, doing house hold chores, anything at all and I'm suddenly so sore and stiff I can barely move and this lasts for weeks. I feel like I've been punched hard all over my body and I'm miserable. I never used to have any problems like this before. What's going on?
Note: I do have lots of health issues that I've had for decades but never had any of the muscle pain or body aches until just two years ago and it's getting worse. I have Hashimoto's Thyroiditis which is an autoimmune disease of the thyroid that causes hypothyroidism. I have type 2 diabetes. I have high blood pressure and high cholesterol. I am on medications for my Hashimoto's, diabetes, blood pressure and cholesterol. My numbers are all good and everything is within a healthy range and the doctor seems satisfied with my numbers and blood tests. Could any of these health issues be causing my very severe body aches and muscle pains, depression and exhaustion or is something else going on?
Note: I do have lots of health issues that I've had for decades but never had any of the muscle pain or body aches until just two years ago and it's getting worse. I have Hashimoto's Thyroiditis which is an autoimmune disease of the thyroid that causes hypothyroidism. I have type 2 diabetes. I have high blood pressure and high cholesterol. I am on medications for my Hashimoto's, diabetes, blood pressure and cholesterol. My numbers are all good and everything is within a healthy range and the doctor seems satisfied with my numbers and blood tests. Could any of these health issues be causing my very severe body aches and muscle pains, depression and exhaustion or is something else going on?
I'm having many of the same symptoms, Extreme fatigue, Body aches mainly extremeties, Severe chronic constipation, sleeping for 12+ hrs and waking up still feeling tired, I also have sore throat and run down feeling. I have celiac disease and was dx over 5 yrs which at first I noticed many symptoms disappear but now 5 yrs later I am having a whole bunch of new symtoms. I also have HIGH b12, and I am not taking a supplement, my GP was very puzzled by this and said she would have to get back to me on what would cause this, what I have researched is that your body doesnt know how to use the b12 properly and is ends up getting stored in your body.
Thanks for your posting. I'm not on Synthroid. I'm on Armour Thyroid which is a natural medication. Synthroid is a synthetic medication. Many people don't do well on Synthroid. If you still need to be on medication for your thyroid, I suggest you ask your doctor about Armour Thyroid. However, don't be surprised if your doctor has never heard of it or refuses to prescribe it. It's a medication that has been around for over 100 years. Many medical schools don't even teach about it any more. Some doctors are under the false impression that Armour is a faulty medication that it's dosage isn't stable...not true. I've been taking Armour Thyroid for 10 years without any problems.
whatswrong527 I suggest you read Mary J. Shomon's book, "Living Well With Hypothyroidism: What Your Doctor Doesn't Tell You...That You Need to Know". I consider it the "bible" on thyroid stuff. You can get it cheaply at Amazon if you buy it used. It's easy to read and not at all boring or too technical and you will learn a lot about thyroid disease, not just low thyroid but also about high thyroid and thyroid cancer. It's a great book!
whatswrong527 I suggest you read Mary J. Shomon's book, "Living Well With Hypothyroidism: What Your Doctor Doesn't Tell You...That You Need to Know". I consider it the "bible" on thyroid stuff. You can get it cheaply at Amazon if you buy it used. It's easy to read and not at all boring or too technical and you will learn a lot about thyroid disease, not just low thyroid but also about high thyroid and thyroid cancer. It's a great book!
I was just recently was put on synthroid for hypothyroidism. I developed pain all over my body that would migrate. The doctor insisted that it couldn't be the medication. Eventually, I quit taking the medication and all my pain disappeared. Maybe I was allergic to it, but don't know for sure. Hope this helps.
I'm so sorry to hear about your Myotonic Congenita. I just read about it on Wikipedia. Only about 1 in 100,000 people have it. This is what Wikipedia says about treatment: Some cases of myotonia congenita do not require treatment, or it is determined that the risks of the medication outweigh the benefits. If necessary, however, symptoms of the disorder may be relieved with quinine, phenytoin, carbamazepine, mexiletine and other anticonvulsant drugs. Physical therapy and other rehabilitative measures may also be used to help muscle function. Genetic counseling is available.
And here's what Wikipedia says about Myotonic Congenita:
Congenital myotonia (also myotonia congenita) is a genetic, neuromuscular channelopathy that affects skeletal muscles (muscles used for movement). It is congenital, meaning that it is present from birth. Amongst other problems, it causes delayed relaxation of the muscles (myotonia) and rigidity. The disorder is caused by mutations in the part of an ion channel gene responsible for shutting off electrical excitation in the muscles, causing muscle fiber membranes to have an unusually exaggerated response to stimulation (hyperexcitability). Symptoms include delayed relaxation of the muscles after voluntary contraction (myotonia), and may also include stiffness, hypertrophy (enlargement), sluggishness of the muscles, transient weakness in some mutations, pain, and cramping. The disorder is caused by a genetic mutation involving the chloride channel of the muscles. In addition to humans, it is also seen in some goats, canines, cats[1] and one breed of pony.
The prolonged muscle contractions, which occur most commonly in the leg muscles in recessive mutations, and more commonly in the hands, face, and eyelids in dominant mutations, are often enhanced by cold and inactivity, and in some forms is relieved by repetitive movement known as "the warm up effect". The warm up effect often diminishes quickly with rest. Some individuals with myotonia congenita are prone to falling as a result of hasty movements or an inability to stabilize themselves after a loss of balance. During a fall, a person with myotonia congenita may experience partial or complete rigid paralysis that will quickly resolve once the event is over. However, a fall into cold water may render the person unable to move for the duration of submergence. As with myotonic goats, children are more prone to falling than adults, due to their impulsivity.
The two major types of myotonia congenita are known as Thomsen disease and Becker type myotonia congenita, the latter sometimes being called "generalized myotonia congenita". These diseases are distinguished by the severity of their symptoms and their patterns of inheritance. Becker disease usually appears later in childhood than Thomsen disease and causes more severe myotonia, muscle stiffness and pain. People with Becker disease often experience temporary attacks of muscle weakness, particularly in the arms and hands, brought on by movement after periods of rest. They may also develop mild, permanent muscle weakness over time. This muscle weakness is not seen in people with Thomsen disease. However, in recent times, as more and more of the individual mutations that cause myotonia congenita are identified, these limited disease classifications are becoming less widely used.
This disorder has high phenotype variability. Severity of symptoms can vary greatly between individuals and throughout the life of the individuals themselves. Part of this may be because there are over 80 different mutations that can cause the disorder, each with their own specifics, and also because myotonia congenita is an ion channel disorder, and ion channels are sensitive to internal and external environmental factors.
Adrenaline/epinephrine is well known to make myotonia worse in most individuals with the disorder, and a person with myotonia congenita may experience a sudden increase in difficulty with mobility in a particularly stressful situation during which adrenaline is released.
Due to the invisible nature of the disorder, the fact that those with myotonia congenita often appear very fit and able bodied, general lack of knowledge about the disorder by the general and medical community, and oftentimes by the individual themselves, and the potential for inconsistency with the symptoms, many people with myotonia congenita have experienced a degree of social persecution at one time or another because of the effects of their disorder.
Some form of myotonia congenita is estimated to affect 1 in 100,000 people worldwide.
Early symptoms in a child may include:
Difficulty swallowing
Gagging
Stiff movements that improve when they are repeated
Frequent falling
Possible complications may include:
Aspiration pneumonia (caused by swallowing difficulties)
Frequent choking or gagging in infants (also caused by swallowing difficulties)
Abdominal muscle weakness
Chronic joint problems
Injury due to falls
Interestingly enough Medavet, I have Hashimoto's Thyroiditis and low potassium, both of which, according to Wikipedia can cause similar pain and stiffness to Myotonia Congenita. But however, they are not even a quarter as bad as Myotonia Congenita. I'm so sorry to hear of your condition. I wish I had an answer for you. I'll keep you in my prayers.
And here's what Wikipedia says about Myotonic Congenita:
Congenital myotonia (also myotonia congenita) is a genetic, neuromuscular channelopathy that affects skeletal muscles (muscles used for movement). It is congenital, meaning that it is present from birth. Amongst other problems, it causes delayed relaxation of the muscles (myotonia) and rigidity. The disorder is caused by mutations in the part of an ion channel gene responsible for shutting off electrical excitation in the muscles, causing muscle fiber membranes to have an unusually exaggerated response to stimulation (hyperexcitability). Symptoms include delayed relaxation of the muscles after voluntary contraction (myotonia), and may also include stiffness, hypertrophy (enlargement), sluggishness of the muscles, transient weakness in some mutations, pain, and cramping. The disorder is caused by a genetic mutation involving the chloride channel of the muscles. In addition to humans, it is also seen in some goats, canines, cats[1] and one breed of pony.
The prolonged muscle contractions, which occur most commonly in the leg muscles in recessive mutations, and more commonly in the hands, face, and eyelids in dominant mutations, are often enhanced by cold and inactivity, and in some forms is relieved by repetitive movement known as "the warm up effect". The warm up effect often diminishes quickly with rest. Some individuals with myotonia congenita are prone to falling as a result of hasty movements or an inability to stabilize themselves after a loss of balance. During a fall, a person with myotonia congenita may experience partial or complete rigid paralysis that will quickly resolve once the event is over. However, a fall into cold water may render the person unable to move for the duration of submergence. As with myotonic goats, children are more prone to falling than adults, due to their impulsivity.
The two major types of myotonia congenita are known as Thomsen disease and Becker type myotonia congenita, the latter sometimes being called "generalized myotonia congenita". These diseases are distinguished by the severity of their symptoms and their patterns of inheritance. Becker disease usually appears later in childhood than Thomsen disease and causes more severe myotonia, muscle stiffness and pain. People with Becker disease often experience temporary attacks of muscle weakness, particularly in the arms and hands, brought on by movement after periods of rest. They may also develop mild, permanent muscle weakness over time. This muscle weakness is not seen in people with Thomsen disease. However, in recent times, as more and more of the individual mutations that cause myotonia congenita are identified, these limited disease classifications are becoming less widely used.
This disorder has high phenotype variability. Severity of symptoms can vary greatly between individuals and throughout the life of the individuals themselves. Part of this may be because there are over 80 different mutations that can cause the disorder, each with their own specifics, and also because myotonia congenita is an ion channel disorder, and ion channels are sensitive to internal and external environmental factors.
Adrenaline/epinephrine is well known to make myotonia worse in most individuals with the disorder, and a person with myotonia congenita may experience a sudden increase in difficulty with mobility in a particularly stressful situation during which adrenaline is released.
Due to the invisible nature of the disorder, the fact that those with myotonia congenita often appear very fit and able bodied, general lack of knowledge about the disorder by the general and medical community, and oftentimes by the individual themselves, and the potential for inconsistency with the symptoms, many people with myotonia congenita have experienced a degree of social persecution at one time or another because of the effects of their disorder.
Some form of myotonia congenita is estimated to affect 1 in 100,000 people worldwide.
Early symptoms in a child may include:
Difficulty swallowing
Gagging
Stiff movements that improve when they are repeated
Frequent falling
Possible complications may include:
Aspiration pneumonia (caused by swallowing difficulties)
Frequent choking or gagging in infants (also caused by swallowing difficulties)
Abdominal muscle weakness
Chronic joint problems
Injury due to falls
Interestingly enough Medavet, I have Hashimoto's Thyroiditis and low potassium, both of which, according to Wikipedia can cause similar pain and stiffness to Myotonia Congenita. But however, they are not even a quarter as bad as Myotonia Congenita. I'm so sorry to hear of your condition. I wish I had an answer for you. I'll keep you in my prayers.
It would take a book's length of words to describe what I've been through but, let me just ask this; do any of you, on an ordinary day, feel pretty normal then, when you do any physical tasks, this is what starts the severe muscle and body pain? I've been to many doctors and have been diagnosed with Myotonic Congenita. Now, they diagnosed me with an EMG. Doctors only learn about this muscle disease from people like me, there is no research. Get this; When I first started looking for answers, I gave all my symptoms and for a disease they know little about, they said, " Oh, that and this are not part of it". The that and this were the attacks of stiffness and pain up to 30 times a day with a noticable progression of the disease. They tried me on quite a few drugs. Some made me sick, some, suicidal and without putting a slight dent into the pain or symptoms. I told the doctors that I can not be a test rat for new drugs so, I went and studied everything I could about muscle diseases then, returned to my doctor to see if he had learned anything new. I told him everything I did before only this time, he said my pain and progression were part of it. I asked for more genetic testing and had to go before a medical judge to state my case. My insurance company lawyer had a doctor 2,000 miles from me, convince the medical judge that all I had was spasms. The judge heard my side but sided with the nut I never saw so, I lost the case. I'm not convinced that I have what they claim I have. I have stayed away from any physical work that puts a strain on my muscles now for 8 months and have been pretty good. The past few days, I decided to try so light duty yard work, just to be out and flexing. I am now loaded with pain killers, 800mg of Ibuprofen, heating pads and ice and feeling like screaming from the pain. My wife says I look like the color of cement and seriously, I beg for Jesus to take me.I don't know where the answers are but man, I've looked. I feel sorry for any of you who know this pain and I will pray that some answers come for all of us. Thanks for the ear
I don't have any issues with gluten or dairy. I was was tested and I'm fine with those.Turns out I do have adrenal problems. Doctor things I might have Addison's disease. But he doesn't seem to be doing anything about it because I've got more pressing issues with my diabetes, depression, thyorid and chronic pain and problems with my hands and mobility issues. He's not a specialist, just a simple country doctor and doesn't really know much about Addison's disease. I live in a small rural mountain community with only about 200 people in the whole town. It's hundreds of miles away from anything and I'm on that county's Medicaid. I can only see doctors in that county who accept Medicaid and he's pretty much it. There are no specialists in the area for hundreds of miles and my county issued Medicaid says I can only see doctors within the county. So I just make due.
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