Muscles twitching, joints pain, upset stomach...and more

[Kristina1]

I am 34 year old woman, 5.7”, 116lb,  4 years ago I started having muscle twitching , some tremors. I had an EEG four years ago, an EMG two years ago and some blood tests and they were all normal. I was told I just have benign festicolations. I am taking magnesium. I’ve also been under a lot of stress. I also feel needle pains and some tingling in random part of the body. I have painful contractions in the right shoulder. No muscle weakness, energy and appetite level varies. I was active in sports until 2 years ago.
NEW SYMPTOMS: In the last two months I have been feeling a lot pain in my joints. In fingers, feet, hands, leg, shoulder,  hip…it seems to be worse with activity, the pain varies in intensity but I am in pain everyday. Some days I have chest pain right in the middle and back of the chest.  The doctor ordered a blood test the result of the ANA was negative. The neurologist did an examination of my body and said it was normal and didn’t order any testing. The rheumatologist, after some questions and a physical examination, ruled out Rheumatoid Arthritis.
(Four months ago I gave birth to my 3rd child. After a week I had sever pain in the right hip and the left foot and knee. Gynecologist told me he never heard of such post partum symptoms. The pain went away after 2 weeks.)
I am frustrated about my old symptoms and worried about the new ones. Should I have to have more tests? WHICH ONES? I am looking for some real answers. Why these new joint pains so suddenly? The doctor believes it’s just stress but I feel I am not taken seriously.
Cristina

[thepurselady]

Kristina

Wow  6 years ago I was in the same boat.  I had noticed those odd exact symptoms.

After going to a few docs and first being told it might be MS I got even more freaked and finally went to the Cleveland Clinic.  A world known neurologist looked at my MRI and listened to me explain symptoms and said this is not MS

To make a long story short I was sent to a physciatrist who I explained I honestly do not think this is anxiety and he insisted since I had a small infant and not good sleep

Went on Celexa for 2 years and I was a much more calmer happier twitching numb with various odd skin sensations woman.  I did stop the celexa and just lived with the symptoms because they I knew it was not MS and was like I can deal with it.  It took another year and they faded.

Its not 6 years later. I have a 2 yr old and about 6 mos ago guess what?  My symptoms came back, burning face, tongue numbness and tingle joint pain and now hair loss, noticable loss.   I have been to 5 doctors in the past 3 months and finally back to the Cleveland Clinic dermatology.  I am told that the on fire scalp that I have is probably due to Fibromyalgia and my next stop, a Rhumatologist.  Had my hair not thinned out, I probably again would have learned to live with my symptoms. I know its not anxiety, sure of this.  I think I have an inflamatory process going on within and that its just not showing up yet on the ANA testings, I hear it can take many years  to manifest and show.  Time will tell but try and rest and relax, eat well take vitamins and take breaks.  Sounds like your on the right track

[Kalio1]

I feel like a broken record always saying the same thing to people but I as misdiagnosed and I think you both should have your liver evaluated and make sure nothing is going on in there. By that I mean have bloodwork done and a full hepatic panel done and be tested for hepatitis b and c viruses. Our livers are the filters of our body and responsible for many metabolic functions. Many of the symptoms you describe are symptoms of hepatitis c. I'd get tested if I were you. Hep c is very sneaky and you can show normal liver enzymes and it can be missed for many years. our joint pain complaints and the tingling really make me wonder as that happened to me too and docs acted like I was a nut case and of course blamed "anxiety" or "stress"
Unforunately symptoms often can be attributed to any number of things so they aren't very helpful in trying to find out WHAT is causing them. It is not true that you have to have used drugs to have hep c either although everything you read about it says you do, it is a myth. 30% of the people who have it picked it up somewhere else. You can pick it up in places you wouldn't have thought of like manicure salons or from tattoos or even during a surgical procedure like I did or at the dentist. People who have it but are diagnosed incorrectly as having fibromyalgia are common. I'd test specifically for hep c and b to make sure you haven't picked it up along the line unknowingly.

[thepurselady]

That is a good point I know HEp C can be devistating and its very serious

I don't have it I have had absolutely every single blood test in the world including a complete metabolic panel, kidneys, liver and that.  YOu get pretty experienced after years of this stuff.

I think the Auto-immune disorders are more common then we think.  Diabetes and Rhumatoid Arthritis are auto-immune.  I believe that is my case but im waiting for the blood work to show it.

[Kalio1]

hep c acually CAUSES diabetes believe it or not. Most people do not know that. I sure didn't before being diagnosed with HCV.

[sfcharm]

I would very quickly get checked by a Lyme Literate Dr. You sound like you might have Lymes with the fasciculations, etc., I was at both ALS clinics in San Francisco, spent 1 yr and $90,000 in insurance monies before I was diagnosed with Lyme.

Go to WWW.ILADS.org for all the information you need to find a LYME literate DR.

[Kristina1]

Thank you all.
I will follow your suggestion on further testing.
I really need a more precise answer about my symptoms.
Thanks.

[moretocome]

I agree with the Lyme disease message.  Did you Pursue that?  Please let us know.