Two years ago, my 18 year old sister was diagnosed with Graves Disease, a thyroid issue. She has since gotten it well under control with medications from her doctor. Unfortunately, a couple months ago, she started having new symptoms, and has been ill ever since. She often gets a very high heart rate, she becomes very pale. she has uncontrollable chills, or terrible fatigue, and dizziness. She also feels very faint, like she will pass out, and occasionally has had trouble breathing. Her thyroid specialist told her last week that her Graves Disease was so well under control, they could take her off the medicine within a month. She has seen a neurologist, two cardiologists, and numerous other specialists, and has been to the ER half a dozen times in the last three months, and we have yet to hear a single diagnoses. She remains without any idea of what is causing this, so there are no medicines or other options. She has returned to the hospital tonight, and I'm sure they will simply tell us that they don't know what caused it, like last time. I don't know where else to turn. Thank you for your help.
Since all those doctors have surely ruled out the most likely causes, you might ask for testing for Lyme Disease. This is, of course, assuming that she lives or has traveled to a place where there is Lyme Disease. Lyme can mimic thyroid disorders and cause fatigue, dizzyness, tachycardia, chills, and shortness of breath/air hunger. There is also a coinfection of Lyme called Babesia that can also cause breathing difficulties. It is difficult to find in tests and many Babesia patients test false negative.
Many Lyme patients also test false negative, and so a negative does not exclude it. It is a controversial disease in the medical world. I went through 12 doctors before I figured it out for myself through research. After I tested negative twice, I got tested at IGeneX, a specialty lab, and went to an LLMD, a Lyme Literate Medical Doctor where I was finally diagnosed with Lyme and another coinfection called Bartonella. After several months of treatment I am much better, no thanks to all the doctors who couldn't figure out what was wrong.
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