Mtgirl,
How were you finally diagnosed with Lyme disease after 24 years??
I think you should see a Neuroligist as soon as possible.
The advice from Mtgirl43 is very good.
Before you go ahead in that direction, since it's a very complex and expensive proposition, I would suggest you rule out other simpler possibilities first.
For example:
-- B12 Methylocobalamin deficiency does not show on standard tests. Easy test: A trial of sublingual methylocobalamin sublingual drops for 1-2 months.
I would also add methylfolate, as a trial to also cover hypomethylation which is dependent on these two
neurological forms of B12 and folate.
People who have the MTHFR gene mutations are at higher risk for low methylation.
--Candida infection. You can do on your own the "Candida Spit test" as a screen.
The self-treatment is simple, however the medical diagnosis is not, since it can be easily missed.
Candida is cell-wall deficient and it can evade detection by most tests, as it can hide deep within the tissues.
-- Low cholesterol levels leading to myelination issues, affecting greatly the nervous system and hormone synthesis.
I'd say anything below 160 mg/dl should be addressed.
--Another thing to be considered is Vitamin D Resistance
cased by:
1. Low cholesterol
2 Obesity
3. Vitamin D Resistance Polymorphism (genetic)
If any of these above factors are present, your current "normal" levels might be inadequate and you would need much higher levels of D3 for proper function.
I hope this helps.
Niko
It sounds like you have Lyme disease and/or coinfections such as Babesia, Bartonella. Mycoplasma, or similar- check out www.ilads.org for detailed information. I can tell you that most docs aren't super familiar with Lyme and will pooh-pooh any notions - I was mis-diagnosed with ms for 24 years when it was in fact Lyme disease, and this was by some of the top neurologists in the country. Don't bother with the Elisa blood test - virtually useless - find a Lyme-literate doctor through that website -