Hello I am glad you got your answer hun. I don't think I answered on your other posts. I just happened across this one today. My daughter has severe Crohn's, as well. She was diagnosed at age 9 and has it from her throat to her rectum, her doctor said she has the worse case she has ever seen in an adult or child, she is now 22.
Many doctors jacked us around too putting her on tums and pepto bismol etc., while I sat and watched my baby slowly dying in front of my eyes. The last day she was at her pediatrician's office he said I really don't know what's going on with her. I believe I'm going to put her on Prilosec and see if that helps her. I told him "The hell you are you are going to refer her to someone who knows what the "blank" they are doing because my daughter's dying in front of my eyes and you're wanting to give her Prilosec."
Thank God, for Dr Mimi Aljabi, when I told her the symptoms and mentioned the bruises on her legs that wouldn't heal she said, "Those are not bruises they are inflammation areas." The inflammation had gotten so bad inside my baby's body that it was pushing out of her skin, and appeared as bruises on her legs.
My daughter has been on Chemotherapy for many years called 6MP, Mercaptopurine or Purinethol. She was too young for Remicade at the time of diagnoses and we had trouble keeping her in remission at first, this worked wonderfully other than the immuno suppression and her catching everything that came along. But it kept her in remission for many many years.
I will keep you in my Prayers, as I do her, that you will soon be in remission and be able to continue on with your life.
Folks, lovechelle is absolutely right about the second opinions. Never be afraid to move on or DEMAND a referral if necessary. Because a lot of people would be dead today, including my daughter and possibly lovechell had we sat idly by and allowed them to do nothing useful, and continue to say I Don't Know. IF YOUR DOCTOR DOES NOT KNOW, THERE IS A DOCTOR OUT THERE THAT DOES, SO FIND THEM.
Have A Wonderful Night and God Bless
I had been bed ridden for 3 years and was on my way to dying....horrible dirrereaha, cramping, severe abdomen pain, sleeplessness...without any diagnosis....doctors wouldn't even perform any more tests. I found out I was being poisoned by Splenda (sucralose) There is no test for toxic liver even though your liver can be functioning properly. Start detoxing, taking probiotics, stop eating any foods that are not all natural, do not microwave anything....aloe vera juice with calm inflammation...check your pH levels (test strips @ health food stores)....start researching natural alternative remedies for every symptom you have.