Since February 2005 I have experienced numbness in different areas, legs, arms, hands, dizziness, fuzzy head feeling, fast heartbeat. Can appear for weeks at a time, and then go away for weeks. I do have neck inflamation. I have had mri's, cat scans, lumbar x-rays, blood work numerous times, cardiogram, chest x-rays, heart moniter, ekgs, stress tests, two nerve conductor tests by a neurologist, been to the hospital twice in a year from these symptons, blood pressure is fine, used to be on nerve pills, paxil, prozac, etc. I can't even name all the tests I have taken. Luckily, nothing has been found, but do not understand why I spend half the time feeling horrible. I am in my mid-30's, about 120 pounds, so not overweight, eat good. Any ideas?
Thank you for your response, are you familiar with Lyme disease, I have wondered about this too, but then I hear the doctors usually just don't know for sure. Do you know what tests are involved? Thank you for any help, I am beyond frustrated.
I'm currently in the process of seeing a neurologist after many of the symptons you described in the original post. I happen to work with someone who gave me tons of info on Lyme disease as she was diagnosed with it 3 years ago and said that all of my symptoms are exactly what led her to keep searching for an answer. She saw about 5 doctors before seeing a neurologist who did a rare urine culture testing after all blood testing failed to reveal the disease,sure enough it was positive result. She began antibiotics immediately and felt better within days! I'm hopeful to finally have a name to go with my symptoms. I'm 37 years old and feel like i have alzheimers along with all the tingling.I know I'm not dying but life would be easier if I had a name of what I have and understand what I have to do to maintain my healthy lifestyle!There are 2 blood tests that should be done back to back to show the bacteria caused by LD. One is the western blot followed by an IFA both tests measure the amount of bacteria borrelia. It may take 3 times before a positive results apparantly the lil spriochete buggers hide very well.I'm tired of being sick & tired, but i wll NOT give up on being healthy again!
Thank you again Scarlet. One more questions, do your symptoms come and go? Mine come every couple of weeks and then disappear. I hope you get better or find some relief. It is beyond frustrating I know. Wish you the best.
YES!! My symptoms come & go too! At first I blamed all of it on my period or pms but the cycle changes everytime these symptoms come about. I started writing on my calender the times when I felt at my worst and it shows a pattern of every 6 to 8 weeks and not necessarily during any specific time of the month.
I'll keep you posted as to how I make out and please do the same. I wish you luck as well. We can't give up when these symptoms interfere with our quality of life, keeep fighting & always smile :)
I went to a new doctor last week, said with all the tests I have had done, I am healthy. Said its stress, and I should be thankful I am healthy. I told her I am, but still do not understand why I feel bad all the time. She had me take more complete blood tests, which I am waiting to see how those come out. And I am going to see a neurologist, when they call me back to set up the appointment.
hi all, I kind of glad when I read your comments. I had all the symptons you mentioned and all tests I had is negative. I have had mri, numerous blodd test and had 2 miscarriages which my obs put me on a series of tests. I kind of feel like having flu every day, cannot think propertly, aching and heavy body, numbness and weakness on certain part of body and lately stiffness in my neck. I kind of frustrated in getting the answers already until I read this forum. I am seeing my GP again and get test on your suggestions above. I will keep you guys posted on this. Thanks for sharing.
I too have been suffering similar symptons to you guys for the past 18 months. So far no one had come up with anything for me either and it is strating to get me down. My Gp put me on anti depressants for 12 months and whilst this helped my state of mind I still have the fuzzy head, tingling feet. buzzing in my ears and I sometimes get numbness in my right little finger and right foot when sleeping. I am going to a neurologist in a couple of weeks so hope to have answers then. I have also done the CAT and MRI scans which have shown nothing. It is so frustrating!!!
What is lime disease??
Hearing it's stress doesn't make you feel better does it. It's like taking your car to the shop & having them say, "Your car's fine, it's just been on the road too much." So you take your car home and it still has the same problem and you're supposed to feel releaved. I feel for you. Hope you find the source of your sickness soon.
I have been feeling many of these symptoms since Last year. I have numb spots on my head sometimes, Neck stiffness, fuzzy head feeling, dizziness, a lot of time i am fatigued. I get so miserable sometimes I cant even work, or make dinner. It is really lousy. I have been to two doctors (the first one wrote it off as anxiety) so I went to the next, we have done 3 cbc tests, an ESR/CRP, Thyroid, Blood sugar...and many more. I have had 2 CT's, a CT of the Abdomen, an MRI, which showed a slight Chiari 1 malformation, and I am scheduled to have CSF flow study, but the fluid does not look blocked on the original MRI, so i highly doubt any of my symptoms are due to CSF blockage. i think my back is seriously out of whack, but that would just cause pain?? My main symptom is fuzziness, sometimes hot flashes. I am getting so frustrated sometimes it is even hard to have fun because i know the next minute i could be feeling lousy again. I am 31, 5 children, and I am not overweight at all. I went to my regular DR yesterday, and she said she didnt want to overmedicalize me, and wrote me a script for prozac,,,,???Prozac? I am a happy person, and the only thing that is emotionalyy weighing on me is my physical state. ANYONE PLEASE help??
I too have been battling the "fuzzy head" feeling for a few years now. Seems to come and go but been getting worse lately. Its also most noticeable in the morning especially while driving or coming out of the house for the first time, however lately it seems to last all day but gets better if I'm engaged in something that requires concentration. It also seems to respond better the more excercise I do so I have been trying to keep up my running and adding some weight lifting. Also Ive cut out alcohol and caffeine (I miss my Starbucks) I do have generalized anxiety and been taking Lexapro for it the past month. The fuzzy head is causing the anxiety which is in turn causing depression. It is very demotivating and scary as sometimes I think Im going crazy and this is some degenerative brain disorder but I have hope that I will find out what is causing it and defeat it.
My doctor is running some blood tests for thyroid, we will see how it comes back. Another thing is it might be hypoglycemia. This page describes very closely my symptoms: http://thyroid.about.com/b/2004/04/28/do-you-have-undiagnosed-hypoglycemia.htm
Good luck. This is great therapy in itself to hear how other people are battling back.
Look up lime disease on the internet, it will explain. It is caused by a tick bite. Can be fatal if not treated in time and/or leave you with lots of problems for the rest of your life. I have a friend that has it, they couldn't find out what it was so she found it one the internet. She had developed a heart condition and was looking that up and found a link to lime disease, the Dr.'s had never checked her for that before and she had had it for quite a while, can't remember all her symptoms but it has left her in pretty bad shape, she takes tons of pills. So look it up and see if any of these symptoms fit.
I have 2 PET scans that show severe Alzheimer's at 35yrs old. Very common in Lyme. Same with other symptoms. The disease is an eoidemic according to the grossly underestimated numbers of the CDC. 10 to 20 times as many are infected as they report!!!!!!!!!!!
Forget MRIs and CAT scans. You need a PET scan. It will show the areas that are working or not. They give the clearest picture and are the most in depth look into the brain. Alzheimer's symptoms and patterns in a PET scan are identical.
70% of Alzheimer's is actually Lyme (Dr, McDonald - Alzheimer's specialist in New York)
There is no Alz epidemic, it's lyme!
I feel like everyday is a dream. Like I've been awake for a week straight. Sometimes I wonder If I'm dead and it's all my imagination like "sixth sense".
I am not a doctor but just another victim of Lime disease, the only difference is I have been diagnosed with this as many times as 7 where I have been reinfected from a tick bite.2001 was my first time but had been fed on by the little bugger for over 24 to 48 hours as that is usually how long it takes to transmit it into our blood.It has to feed on you and it goes through its intestines and then I believe that's how we get it as it then it regurgitates it back into your blood stream. I have had the red or pink rash, they call it a rash but mine always looked like a pink pressure mark as if you had your heel laying on your other leg for awhile and you see a pink mark although I had 15 marks after the first one was there for 2 days,not that I was bit at those spots just that's how it can show......Scarlet37..... really has good information, I went through all those tests all of you went through.The doctor didn't believe I had Lime disease.I thought I did, even the hospital ran every test possible but not Lime.I even told the the doctor I saw a deer tick crawling on me.
Now of course my doctor listens and I know when I am reinfected or just when it comes out of hiding as it can lay dormant in your nervous system and come out and make you feel sick again.Numbness and tingling, memory problems/tiredness,sometimes sleeping problems too, now use Ambien at least 3 to 4 times a week to help sleep good.Common neck problems but not usually when I am on the anti biotics/headaches but again after antibiotics I feel allot better but not completely.I had it also attack my heart and first had an enlarged heart by not being diagnosed properly, but after 6 months of antibiotic's as the heart size went back to normal but did some damage to my valves,now have mitral valve prolapse.After 7 years I realized this is it, I never will ever feel like my old self again.Just had to accept it.I seriously think I have Alzheimer's and would like to get the PET test mentioned.But I also believe that this is really the cause of it that you have Lime then you get Alzheimer's.
I started with flu like symptoms June of 2001, thought I had poison ivy behind my knee it itched, didn't realize it was a tick bite, so for me the itch is the first sign, then fatigue, legs ached and the head ache all with in 24 to 48 hours.slight fever went to bed feeling like the flu, but it didn't get better like normal, kept getting worse.Now some people, more than most get better in a few days then 3 weeks maybe get a rash but most people don't notice the pink mark .It usually takes 2 to 3 weeks for the test to show positive, it was 3 or 4 weeks after i was first infected but clearly showed positive. had the western blot followed by the IFA .as Scarlet mentioned above, any how any one who thinks they have this, don't take one negative test to think you do not have it.There are false negative and false positive I believe but remember these little ticks are also carried more by the white footed mouse not just deer, they are in the leaves and on the ground and in the bark of a tree and start a nymphs first and feed on the Little things , like the mouse , then the larger ones more likely in the summer,i have been infected in March and June and September.and live in Pennsylvania.I do live in the woods but that is my down fall, but where ever there are rodents or animals there are ticks the size of a dot at the end of this sentence. Really this small, i have them to show people.I usually remove it from my cat around the eye.I use a very strong clear tape,like postal tape to remove them from my skin if I find one on me.This way i have a good specimen to show .I have the nymph which like I said is truly small, so in spring they are not noticeable.In summer they have fed and now are a bit more noticeable, but by fall more like August /Sept/Oct/ they are adults but still are like the size of the bottom of this ''a.'' NOT THE SIZE OF THIS " a"' but the bottom circle part and that's if they have fed on you.filled with blood.check out site's on internet for pictures.Good luck!!!
I've had a fuzzy head for a number of years. It has become more of a problem lately. I've eliminated all kinds of foods from my diet trying to figure out why I feel so bad all the time. I've noticed some days aren't as bad as others. I noticed I would feel worse when I made beans or soup that cooked for a long time. I finally figured it out! Its my non-stick cookware! I looked up tephlon toxicity on Google. Check it out. I will always cook with stainless from now on! I hope this helps other people with the same symptoms!
hey yeah i've similar problems before maybe its a reaction to the shampoo you are using or something you could try using like natrual products in your hair when you wash it. good luck with finding the cure.
for most of my life ive suffered a strange sensation on my head like heavieness at top or pressure on either side of temple my head feels very tight with no pain it does go away but can last weeks and causes me anxiety and stress and i cant work,i also get weakness in legs and arms any one any idea
Im 44, have anxiety attacks, but have been good the last 12 months, but i get on and off, just now its been 3 days straight, fuzzy faiinting feeling, head heavy, arms ache and legs feels like the inside of my body shaking at times, nauseas, and it fets worse arond 4, 5 oclock. Just sick of feeling lousy any suggestions, ANYONE ???? I have a glass of red wine most nights could that be the cause, i take teveten
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