You're welcome! Please look for my private message!
My 'poor mans tilt table' all summer has had my pulse jumping from about 85 lying down to about 120 standing up. Its not so bad at the moment fortunately so hopefully it will stay that way.
Ok. I understand that blood test a bit more now so thank you. I've had low iron stores and anaemia in the past but as I said in my original post this time it was just the iron stores that were low.
I've made a double appointment with a different gp and my local doctors surgery. I'm going to go along with all the information you've put my way and ask to see another cardiologist. One of the doctors in the UK listed on the Dysautonomia Information Network is fairly local to me so I'll ask if I can see him.
I'll drop "evo" a message.
Thank you so so much for all your help. I feel like there might be a glimmer of light at the end of the tunnel at last.
A cardiologist or even more specifically an electrophysiologist, either one might conduct a tilt table test to come up with the diagnosis. There is also the "poor man's" tilt table. Try laying down for ten minutes and take your own pulse, stand up and after two to three minutes, take your pulse again. If the number is up 30 beats or more per minute standing compared to lying down, I'd pursue trying to get an official tilt table test.
CBC is a complete blood count., which includes red blood cell count, hemoglobin and hematocrit. But getting a blood iron, T.I.B.C. and ferritin levels are separate and your full or complete blood count can be normal and it's till possible your iron level can be low and your ferritin (stored iron level) can also be low. TIBC is total iron binding capacity, and the higher that number is, the more your body is binding onto the iron intake you consume because it has need of it. You might look up "evo" on the dysautonomia forum, a friend of mine also from the UK.
I think I've worked out the CBC. Is it Complete Blood Count? I'm in the UK and we would call it FBC here, Full Blood Count.
I've had my ENT appointment and have been given the all clear from an ENT point of view. I had a CT scan of my sinuses and they show no sign of sinusitis. He suggested that the improvement in my condition while taking antibiotics may have been due to the inflamatory effect they have rather than the anti bacterial effect.
He suggested that there may be more than one cause of my symptoms. He felt that the tachycardia may be viral based while the headaches, vomiting and facial pain may be facial migraines caused by having a long term illness and has referred me to a neurologist. I do get classic migraine.
SurgiMenopause, I've checked out the dysautonomia forum here and looked the condition up on Wikipedia. There are many many similarities between the listed symptoms and my symptoms. The tachycardia when moving from lying to standing is exactly what I'm experiencing. The tingling/trembly back muscles is more pronounced around the chest area.
Would a neurologist be able to diagnose this condition?
Can you also tell what CBC is please?
Thank you to both of you who replied to my original post.
I will also check out the dysautonomia forum as suggested. Thank you.
Thank you for your help.
I was diagnosed with gastric reflux and IBS in 2004 and take Lasoprazole daily to keep the symptoms in check. How might this be relevant?
In the past I've also had Erythema Nodosum, with ANA's resulting in severe inflamatory arthritis. My joints are ok now except for when I get a cold and they ache.
Hi
Welcome to the forum!
Well, since you are responding to antibiotics and your blood tests show there is infection then it is possible that you have chronic sinusitis.
It is also possible that you have an inflammatory bowel disease such as Crohn’s disease with symptoms outside the GI tract.
Prolonged illness can also cause weakness and tachycardia. Some tachycardia is present even in case of infection. Hence once the infection subsides the pulse rate may return to normal.
What is important is that you find the cause for your sinusitis—such as nasal polyps, tumors, deviated nasal septum, allergies, cystic fibrosis, HIV, gastric reflux etc. Please discuss this with the ENT when you see him.
Hope this helps. Please let me know if there is any thing else and do keep me posted. Take care!
Check out our dysautonomia forum on here! Have they mentioned the possibility of conducting a tilt table test to see if you have postural orthostatic tachycardia syndrome (P.O.T.S.)? It is not uncommon to have extreme thirst if you have this condition.
You can have normal CBC and low iron and ferritin levels, and still have tachycardia aggravated, shortness of breath and tiredness. I have P.O.T.S. and all these symptoms were worse when my iron was low, even though my CBC was normal.