Undiagnosed Symptoms Community
Problem with muscles and sense loss
About This Community:

This patient support community is for discussions relating to undiagnosed symptoms, breathing difficulties, feeling cold, cough, diarrhea, dizziness, fainting, fever, indigestion, itching, nausea, numbness, pain (chronic), paralysis, rash, sweating, swelling, urination problems, and vomiting.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Problem with muscles and sense loss

Hello!

I am 19 years old, and when i was about 7 years old my parents first noticed a skin disorder on front part of my right tigh. I was treated with basic hidrating losions and that is it. Later, when I hit puberty I noticed that my rught tigh is thinner than the left one, for about 3 cm. Later the shape of the upper part of my leg changed and it was obvious that some parts were simply missing. The skin in that area was/is almost transparent. Later on I started feeling tingling in my lower part of my right leg, below the knee and I lost sensation in that area. Same thing later happened on my right arm, but it is not as serious as my leg.
Doctors were never sure wat was the cause or the exact name of the disease. I was treated with physical terapy, but it didn't prove very helpfull.

I did tests for blodwork, something with those neeedles, and they said that the results were ok.
About the musle loss, they said that my muscles were atrophic, but that I also have no fat in that area and that the only way to compensate that fat is by plastic surgery, but I refused that option.
I went to physical therapy for years, and the only sign of improvement was a little muscle ''comeback'' in the middle of the front part of my thighs. After that the doctor said that there might be a slight chance of replacing the missing fat with muscles, but that never happened since after my doctor found out that the problem is not that much in mucles as in the fat, said that the ph. therapy is not that necesery.

I should also mention that my reflects are a mess. When my doctor tried to do the test with the little rubber hammer( i don't know what it is called) my leg barely moved after many tries.

Thank you very much for your answer!
Blank
Avatar_m_tn
'Acrodermatitis chronica atrophicans'
' is accompanied often by peripheral neuropathy, musculoskeletal pains. You should rule out this condition which is related to 'lyme disease'
Best wishes..
5 Comments
Blank
Avatar_f_tn
Anyone?
Blank
Avatar_m_tn
'Acrodermatitis chronica atrophicans'
' is accompanied often by peripheral neuropathy, musculoskeletal pains. You should rule out this condition which is related to 'lyme disease'
Best wishes..
Blank
Avatar_f_tn
Thank you very much! I just saw some pictures of this disease, and it looks a little biz like this, altough I have no redness in the affected area, and my condition doesn't seem so advanced as in the pictures.
Blank
Avatar_m_tn
Being a treatable condition do pursue along these lines. ok?
Blank
351246_tn?1379685732
Hi
Welcome to the MedHelp forum!
It is quite possible that you have Lyme's disease, and there was skin manifestation along with nerve and muscle problem. If there is muscle wasting creatinine levels will be low, and CPK-MB enzyme high. ELISA test is performed to confirm Lyme borreliosis. The good news is that, even an advanced stage can be treated with antibiotics.
Other possibilities are Crohn's, rheumatoid arthritis, and lupus.
Since I cannot examine you and know other related conditions you may be having, nor is a detailed history possible on net, I have listed the various possibilities that should be looked into. Please consult your PCP to run tests and examination to clinch a diagnosis.
Take care!
Blank
Continue discussion Blank
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Undiagnosed Symptoms Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top General Health Answerers
363281_tn?1353103243
Blank
SassyLassie
Nelson, New Zealand
4851940_tn?1385441629
Blank
jemma116
United Kingdom
1530171_tn?1418143903
Blank
TheLightSeeker
London, ON
1268057_tn?1431952537
Blank
Londres70
France
1780921_tn?1416842066
Blank
flipper336
Chandler, AZ
1622896_tn?1426267159
Blank
bobdylan1958
Somewhere ?, United Kingdom