Undiagnosed Symptoms Community
Searching for answers
About This Community:

This patient support community is for discussions relating to undiagnosed symptoms, breathing difficulties, feeling cold, cough, diarrhea, dizziness, fainting, fever, indigestion, itching, nausea, numbness, pain (chronic), paralysis, rash, sweating, swelling, urination problems, and vomiting.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Searching for answers

3 years ago I began a battle with on again off again dizziness, exhaustion and joint pain. 1 month ago while driving home from work the dizziness hit with a vengeance it felt as if someone had shoved me very hard to the left. I have had this type of dizziness before but never quite this severe. I also get dizzy while bending over. I often lose my balance and forget trying to look up at the stars it's a nightmare as I nearly tip over. I've been to a rheumatologist, neurologist and today went through a VENG test. So far no answers, to this point my blood shows nothing abnormal, the VENG results won't be revealed until my next appt. on 5/22. I've depleted my leave from work and must return on 5/24 but I have to say I'm terrified because the dizziness just won't go away. 3 long years of no answers, I'm becoming a little depressed, these symptoms are real but I feel like people believe it's all in my head! Any insight would be greatly appreciated.
Blank
4851940_tn?1385441629
Dizziness and loss of balance can come from an inner ear infection and also from neck and spinal problems.

Either extremes of blood pressure (high or low) can also cause dizziness.

Joint pains can come from different types of arthritis.  I don't know if the rheumatologist would do just blood tests to see if you have an autoimmune arthritic rheumatoid arthritis, gout, lupus) problem or whether he also does xrays to show up degenerative changes in the bones (osteoarthritis).

As you had blood tests done, I presume your blood levels were fine?

Best wishes.
7 Comments
Blank
Avatar_f_tn
Today my lab results from the rheumatologist came back. They showed nothing more than low level vitamin d.
Blank
Avatar_f_tn
Low level Vitamin D can mean several things  - including problems with the parathyroid glands, malabsorption, among other things.  Take the Vitamin D dosage that your doctor recommends.  You may need to see an endocrinologist who can determine if your low Vit. D levels are due to parathyroid problems.  
Blank
4851940_tn?1385441629
Dizziness and loss of balance can come from an inner ear infection and also from neck and spinal problems.

Either extremes of blood pressure (high or low) can also cause dizziness.

Joint pains can come from different types of arthritis.  I don't know if the rheumatologist would do just blood tests to see if you have an autoimmune arthritic rheumatoid arthritis, gout, lupus) problem or whether he also does xrays to show up degenerative changes in the bones (osteoarthritis).

As you had blood tests done, I presume your blood levels were fine?

Best wishes.
Blank
Avatar_f_tn
thank you for taking time to answer.
Blank
Avatar_f_tn
Thank you jemma, it's been a battle.  A physician assistant I seen about 3 years ago believed this to be Lupus. I've had 2 positive tests in the past, the first one 30 years ago, the second 10 years ago both were dismissed as false positive due to the fact that back then I showed no other symptoms. The last 3 years have been difficult, same recurring symptoms but they seem to be getting worse now. I've been tested again but the test always returns negative.
Blank
4851940_tn?1385441629
Seems very strange about the lupus thing with showing positives and then negatives!

As your blood tests for autoimmune disorders have come back negative and you are feeling dizzy when looking down and looking up, have you had your neck x-rayed?  Osteoarthritis in the neck can cause these symptoms.  Have you been involved in a car accident and suffered with whiplash at some point?

Osteoarthritis is a degeneration of the bones and cartilage and this happens slowly over time and also if you have had any injuries.  Although nothing showed up in your blood tests, this does not mean that you do not have a problem.  It just has not been found and diagnosed yet.

If this is all making you feel depressed (I know the feeling), the doctor can prescribe some antidepressants to help you cope mentally and prescribe pain relief and possibly an anti-inflammatory if you are experiencing a joint problem.  That is all they do for me (except I am allergic to Ibuprofen).  It may also be a good idea for your doctor to refer you to a physiotherapist to give you advice you on gentle exercises to keep you mobile.  

Infections can also cause joint problems.

Best wishes.

Blank
Avatar_f_tn
Lupus does that.  My friends and daughter test positive then negative.  One thing is that diet and nutrition seem to mess with the tests.  When you eat nightshades (tomatoes, eggplant, peppers, mushrooms) the Lupus flares up and the test will be positive. When you avoid these foods, the Lupus test comes back negative.  - Just some info you might find interesting.
Blank
Continue discussion Blank
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Undiagnosed Symptoms Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top General Health Answerers
363281_tn?1353103243
Blank
SassyLassie
Hanmer Springs, New Zealand
Avatar_f_tn
Blank
mkh9
CA
1530171_tn?1418143903
Blank
TheLightSeeker
London, ON
4851940_tn?1385441629
Blank
jemma116
United Kingdom
1756321_tn?1377771734
Blank
Red_Star
Queensland, Australia
1622896_tn?1418684976
Blank
bobdylan1958
Outside London, United Kingdom