Thanks for your comments, and sorry for not getting back sooner.
I have had an MRI scan and EGM tests which have showed I have abdominal propriospinal myoclonus - apparently it's very rare. Waiting to see a neurologist now to see if there are any other tests needed such as an EEG.
Thanks
Mel
I think I saw this question in the GI forum.
In any case, the recommendations remain the same. I would consider an upper endoscopy, and if negative, esophageal motility studies.
An esophageal motility disorder can result in spasms, and may not respond to Valium and other benzodiazepines.
If the GI workup continues to be negative, there are some neurological causes that can lead to uncontrollable spasms. Starting with an imaging study of the head, with a CT scan or MRI, would be a recommended step, along with a neurology referral.
This answer is not intended as and does not substitute for medical advice - the information presented is for patient education only. Please see your personal physician for further evaluation of your individual case.
Kevin Pho, M.D.
www.kevinmd.com
www.twitter.com/kevinmd
Get a neurologist to see you in the ER. If fact, demand one...
P.S. the 3x /day comment was referring to the Flexeril muscle relaxer that I was talking about in my previous post in this thread. Again, take all prescriptions as directed by you doctor or pharmacy...
I don't know what diverticular disease is. Diazepam is the generic name for Valium. I just looked it up on MedicineNet.com and here is its description:
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Diazepam is an anti-anxiety medication in the benzodiazepine family, the same family that includes alprazolam (Xanax), clonazepam (Klonopin), lorazepam (Ativan), flurazepam (Dalmane), and others. Diazepam and other benzodiazepines act by enhancing the effects of gamma-aminobutyric acid (GABA) in the brain. GABA is a neurotransmitter (a chemical that nerve cells use to communicate with each other) that inhibits activity in the brain. It is believed that excessive activity in the brain may lead to anxiety or other psychiatric disorders.
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I am currently taking clonazepam for my muscle spasms. I take 0.25 mg in the morning and then 0.5 mg at night. I don't know if these drugs are generally the same in a milligram-to-milligram comparison, but if they are, I am surprised that you are even able to stay awake when taking a 5 mg dose! You must be a zombie once it enters your bloodstream.
It sounds like they shouldn't have discharged you. My personal opinion is that many times doctors don't know how to code an unknown diagnosis, so they release people. I would go to another hospital's ER and get admitted. You can't function in your current state...
By the way, I also take 300 mg of Trileptal which is another Central Nervous System medication, plus 10 mg of cyclobenzaprine which is a muscle relaxer. The brand name is Flexiril. The muscle relaxer will definitely help the muscles from cramping up. Most prescriptions are written to take as needed with a maximum of 3 doses in a 24 period. Like I say in all my posts, I am not a doctor, I am just sharing my own personal experience and knowledge that I have concerning my own disease/syndrome. Follow whatever instructions that your doctor and pharmacy give you.
Please let us know how you are doing as soon as you can post online again,
Mark