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Avatar universal

TBI and temperature regulation

My husband suffered a severe penetrating brain injury a little over a year ago. If there's one thing that I've learned, it's that you have to take control of your own healthcare these days! I have trying to tell the doctors that I don't believe his body is regulating its temperature properly. I can imagine that this could be very dangerous. (Especially living in Florida)  they have finally come around to agreeing with me. He has already had his pituitary gland checked and it came back normal. What should I expect next?
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Avatar universal
Hello again,

To get the most out of a visit to an endocrinologist you should be able to answer the following questions with respect you our husband's history:

Weight gain or weight loss over time?

Body temperature: fluctuations? Exaggerated? Steady?

Body temperature regulation (you already confirmed that)

Mental function: does he have brain fog? Is he slower than previously?

Depression: does he have this and if so, is it sometimes or often?

Does he have pain? If so where is the pain; how strong is it and how long does it last?

Does he crave food? If so, sweets? Salty? Fats?

How is his night-time sleep? Sound or does he wake up dying the night.

The more facts you can give an endocrinologist or neurologist the more you and your husband will get out of the visit.

Best wishes.
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Avatar universal
You need to put your husband under the care of an endocrinologist who works with or in a pituitary centre in a hospital that has high volumes of pituitary surgery.

Such an endocrinologist may be called   a neuro endocrinologist, and is well versed with all issues related to the pituitary gland.
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