The comment about Weird Toonsy Disease was the neurologists attempt at humor. My name is Toonsy. If I only have pain on one side of my body I must be weird.
Thank you.
I am not familiar with Toonsy Disease and cannot comment on it.
You have had a comprehensive workup with several specialists, and it would be unlikely that I can come up with something on the internet without examining you.
The symptoms sound neurologic in nature - obtaining another opinion at another major academic medical center can be considered. Repeating the MRI and nerve conduction studies would be a reasonable initial approach.
If the tests continue to be negative, I would consider a pain management specialist, especially if the pain persists despite the numerous evaluations.
Followup with your personal physician is essential.
This answer is not intended as and does not substitute for medical advice - the information presented is for patient education only. Please see your personal physician for further evaluation of your individual case.
Kevin, M.D.
kevinmd_