Dear all,
Could someone please help me??
I´m here because I´m devastated about my child´s symptoms. I took her in almost all doctors in our city but none helped us until today. I am having a very bad time watching my daughter turner each day sicker, and I don´t know what to do anymore. I know you are not doctors to give my child a diagnosis, but I beg you for God´s sake to help us with the information you have.
Alicia´s story:
Let me tell you our story. My name is Terrye and I have a 22 year-old daughter named Alicia. She is an amazing inteligent and child, who grew up without any serious health problem. When she was 12, she started having heavy mood changes and insomnia. I took her to the doctor but I was told to only look for help if she started to have problems at school. Alicia was a brilliant child and never had low grades, only some kind of inability for making friends, but I guess it´s her shy personality. When she was 13/14, she started saying that many times a day she felt as if she was dreaming, as if her body was light and she felt creeps in her arms and legs. She said that during these episodes, she fixed her eye on a place or object and could not move her eyes off, even if she wanted. During these episodes, she could not move either. At this time, she started to feel very very tired during the morning and after lunch, but the insomnia continued (she used to sleep 3, 4 hours/ day). Again, when I took her to a doctor, I was told to not worry about. From 14 to 19, her symptoms continued and other bizarre ones came: She used to say that sometimes she felt as if her stomach was growling in her shoulder, or that she felt that her feet were moving when she moved her hands to write; She used to say that some days she could not see the right colors (she sees everything in a red color, or like a sepia picture); And she used to say that sometimes during classes, she felt as if she was in another place or in another year. During this symptom, she could not move or feel her body and could not return to pay attention on her school chores. Again we went to a doctor and again we were told that these symptoms were nothing but stress. Maybe she was stressed about the idea of being at High school or something. These symptoms continued but never caused any health or social problem: She graduated High School and was accept at Medical School in 2007.
In the spring of 2008, when she was a fresher at Medical School, she was hanging out with friends in her sisterhood when she suddenly felt her legs fade. She tried to straight them up, but she lost her consciousness. Her friends told me that she fell, turned very tough and warm and her lips turned blue. They were taking her to hospital when suddenly she started to shake. When the shaking stopped, she urinated and defecated. She was taken to hospital and doctors said that she had a seizure, she was medicated and sent home. On the following day she had 3 episodes like the one above, and the same was done. She did not tell me about these episodes at that time, and continued at college. On August 2008, she came home and told that she was feeling very tired and weak. Her sleep was not normal: She told that sometimes she missed classes because she slept 12/ 15 hours in a row. And sometimes she spent more than 30 hours without any sleep, but feeling tired. Her attention and memory were descreasing, her humor was changing rapidly, she started having illusions and hallucinations (talk to people that does not exists and could not realize it!) and the teenage symptoms returned stronger then before. On October 2008, while a visit to her father, she had a similar seizure and after that she told her dad that she was not seeing any color (she was almost 1 month without any color vision). I tried to help her at that time, but she denied and returned to university. I could see that she was socially isolated (included from her family), but she was avoiding any kind of help from her family. She told me recently that at that period she was on psychoterapy and going to a psychiatrist that diagnosed her Bipolar.
After the holidays, before returining to university, I took her to a doctor (before knowing that she was on therapy). He asked a CT and a MRI, these exames were normal, so I was told to take her to a psychiatrist. She denied. During 2009, she had no seizure, but was evidentially ill and depressed. She was missing many classes at university, was isolated from her sisterhood sisters and the symptoms above were stronger than ever. During summer 2009, she came home and told that she was on psycotherapy for almst one year and things only were getting worse. She told that she tried two diferent antidepressants and three different antipsychotics and nothing helped her. She was having bad grades, could not concentrate, could not leave home, could not eat, shower and do things on her own. She only felt tired, depressed and had that bizarre symptoms described before. She also started to do things without realizing it: Many times she said she lost her consciouness (as if she slept) started walking without direction and then "woke up" in an unknown area. From August 2009 to June 2010 I had a real journey to recover her, but her psysical, mental and emotional health only seems to get worse; During this period, I took her to two psychiatrists and I was told that she has Schizophrenia, Borderline Personality, Schizoaffective Disorder, Psychotic Depression and even Asperger Syndrome!! During this period she was on intense psychotherapy and ocupational therapy and tried 3 different antipsychotics and 2 different antidepressants. NOTHING CHANGED FOR BETTER, THINGS ONLY TURNED WORSE...