Undiagnosed Symptoms Community
Unknown what to do
About This Community:

This patient support community is for discussions relating to undiagnosed symptoms, breathing difficulties, feeling cold, cough, diarrhea, dizziness, fainting, fever, indigestion, itching, nausea, numbness, pain (chronic), paralysis, rash, sweating, swelling, urination problems, and vomiting.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Unknown what to do

My mom is 54 years old and is having extreme pain on the left side of her head, her left hand turns purple and she feels like she is going to pass out all the time. She looks sickly and pale. She has never been sick before except for some colds. She has a thiroid problem and she takes medication for that, but that is all of her medical history. Over 10 doctors, from cardiologits to neurologits, have looked at her and cannot find anything. She went to the Mayo clinic for 8 days to get tests done. They thought they may have found a vein in her head that may have been the problem, but they did a biopsy and it was negative. What other options are out there beside the Mayo clinic or some possible diognosis? This has been going on for over 8 months going back and forth to different doctors. Im scared that she may die. Thank you for your time and ideas.
Related Discussions
5 Comments
Blank
351246_tn?1379685732
Hi
Welcome to the forum!
I would say seriously look into thoracic outlet syndrome or TOS. What your mother is suffering from is symptomatically very close to the vascular variant of TOS. X rays of neck or shoulder, venography, angiograms, pulse recording etc may be required. Talk to the cardiologist regarding this possibility. There may be associated nerve compression too causing headaches.

Hope this helps. Do discuss this with her doctor and get her examined in this line. Please let me know if there is any thing else and do keep me posted. Take care!
Blank
Avatar_f_tn
Thank you for the advice...She is going to see her nuerosurgeon this week and cadiologist next week, so maybe they can take a look at that with all the test results she has from Mayo. I did a little reading on wikipedia and it shows posture along with sitting at a desk all day. She is an accountant and works long hours, 12 a day, so I send her your message. Thanks again and I'll post some more information when I get it.
Blank
Avatar_f_tn
I advised my mom of your advise and she said that she was tested for that both at her regular doctor and at Mayo with negative results...Just FYI   Thanks again.
Blank
Avatar_f_tn
They may have found out the illness. occipital nueropothy(probably spelling it wrong) Last week, they inserted some nerve blockers into her brain to see if that would help....FYI
Blank
351246_tn?1379685732
GR8
Blank
Continue discussion Blank
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Undiagnosed Symptoms Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
Top General Health Answerers
Avatar_f_tn
Blank
silverfox67
Clifton, AZ
4851940_tn?1385441629
Blank
jemma116
United Kingdom
Avatar_f_tn
Blank
mkh9
CA
1340994_tn?1374197577
Blank
Caryopteris
Raleigh, NC
144586_tn?1284669764
Blank
caregiver222
1780921_tn?1384615710
Blank
flipper336
Chandler, AZ