Violent full body convulsions whenever I'm trying to sleep?

[KillamSin]

The past couple of weeks I’ve been involuntarily convulsing whenever I’m a bit too tired (I have FM, I am always tired). It’s not tremors, it’s full out convulsions where my arms and legs and head and everything jerk. It’s worse when I lie down then when I don’t. I have no control over it. I can feel the convulsion coming and I can stave it off a little bit but the pain builds and builds in my body until it “explodes” and I jerk violently. If I try and stave it off it makes it worse and repeats itself more than if I let the convulsion happen in the first place. If I let the convulsion happen then I sometimes only get a couple smaller convulsions. It doesn’t stop until I’m asleep and doesn’t happen when I wake up; it progressively gets worse during the day. The only things I can find online for convulsions are seizures, but I’m totally conscious for everything and I don’t think it is epilepsy. I don’t know why this is happening, the only thing that’s changed in the past couple of weeks is that I had an ectopic pregnancy and got an injection of MTX, but I don’t think that is responsible (I don’t really know, though). I can’t get to a doctor to ask about this (I live far away from a hospital) and I’m really worried. Can anyone give me any idea of what it is and if I should try and find a way to get to a doctor?

[kitkat110]

Can I ask you a question? When you feel the convulsions coming, does it feel like your body has sort of tensed up? Like when you get a chill and your body gets tense just before you shiver? I'm curious because this happens to me quite often, but I always manage to keep from the actual "shiver" part. I feel like I'm just going to shake all over (so maybe a convulsion or seizure type thing). It's scary because it often happens when I'm not home (unlike you) but I wonder if it is a similar problem.

[Dr. Kokil Mathur]

Hi
Welcome to the MedHelp forum!
It is possible to feel tremors/convulsions all over the body. Tremors are often associated with drugs, alcohol, smoking, lack of sleep, stress and fatigue. They can be seen in peripheral neuropathies of diabetes, in hyperthyroidism, parasomnia, multiple sclerosis, TIAs or transient ischemic attacks or mini strokes, hypoglycemia, disorders of calcium metabolism, hyperparathyroidism etc. Consult an internal medicine specialist or your PCP. Discuss these possibilities with your doctor. It is difficult to comment beyond this without examining. A comprehensive investigation is required keeping all the points in mind.
Take care!