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WELL, MORE SYMPTOMS, MORE UNDIAGNOSIS

by kenneltech, Oct 24, 2009 04:43AM
I have total body system problems lately.  First, I went to the doctor and she said I was in menopause (which was cool), but she also said I was hypothyroid, she put me on some pills (Levothyroxin (levothyroxine)).  Then, I gained about 80 lbs. in a very short period of time (and I;ve done this twice before in my life), and they didn't know what it is.  Then, I had a gallbladder attack, and had to have surgery to remove it.  Then, they said I was borderline diabetic, and also started to have high blood pressure.  Then, my throat closed, and they operated and opened it back up, so then my stomach had parenthesis, which I know take meds for, now I have a "stiff" heart, and my restless legs are SO BAD that they have now TRIPLED  the medication, Iwhich is dangerous), and I'm beginning to even wonder if it IS restless leg!!  I am SO FATIGUED, SO TIRED, NO ENERGY, BRAIN FOG, DEPRESSED, FEEL LIKE ****, I ACHE, AND I HAVE NO AMBITION, not to mention, I look like shi-!!  NOW, A NEW PROBLEM HAS JUST STARTED:  ITCHING EVERYWHERE, CONSTANTLY, ALL THE TIME!!!  I can use lotions, you name it, I ITCH, and no, it's not an allergy!
CAN'T SLEEP, IT'S NOW 3:37 AM, AND I'M AWAKE BECAUSE I CAN'T SLEEP AND BECAUSE MY LEGS ACHE AND I ITCH!!!  I've gone to so many doctors, and all they EVER do is a cortisol test (4 of already did this), a thyroid test, (they all did that one, too), and then they say they don't know what's wrong.

In the meantime, I'm going to school, and I'm about ready to drop out even though I am holding a 4.0 average, but what's the use, if I can't work when I graduate?????  NOT FEELING LIKE THIS I can't.

CAN ANYONE REFER A GOOD, EXCELLENT DOCTOR IN DENVER FOR AUTOIMMUNE DISEASES?  NO ENDOCRINOLOGISTS, HERE, ALL THEY DO  IS THYRIOD AND DIABETES, I KNOW, I'VE BEEN TO A BUNCH!!!

It is a rheumatologist I need to see?  What do you think of these symptoms?  I'm thinking total hormonal disfunction, which is an autoimmune disorder.  OH, ALSO, MY FINGERNAILS ARE GETTING THICK AND DISCOLORED AND LUMPY!!!    WHAT THE HELL NEXT??    please help
Member Comments (4)

by SurgiMenopause, Nov 01, 2009 02:04PM
To: kenneltech
I don't recall if you told me if you had an MRI of your pituitary w/and without contrast (dynamic) MRI.  I had an internal med doctor order my first one.  Did anyone order a 24 hour cortisol urine or just simple blood tests early in the AM or in the afternoon?

A close relative, when she was alive, had an itching problem and the doctors tried to tell her it was dry skin.  Turned out it was scabies, passed onto her likely by some people who stayed in her house.  It is very catching and can really itch a lot.  Elomite treatment and washing everything fabric you use, including all the clothes in your closet with hot water is the treatment for it.   Is it possible one of your pets has it, as it can spread I saw online from dog to human?

   Another relative has an itching problem when sweating, because of an allergy to their own bacteria.  Since you are now in menopause and likely having those infamous night sweats and personal summers, I wonder if this is a possibility?  Have they checked your nails for fungal infection?

by doctornee medical, Nov 01, 2009 07:28PM
To: kenneltech
Hi
Welcome to the forum!
In menopause dry skin is the commonest cause of itching. No amount of lotions and creams help, unless they are estrogen based. Also such estrogen based creams should not be applied without prior consultation with a gynecologist. Hence to get a hormonal assessment please consult a gynecologist.
The other thing which should be investigated for is liver dysfunction. This can also cause itching.
Treating hypothyroidsm is a tricky thing in some people. Giving the hormone pills causes weight gain and other symptoms. You are right in thinking that there could be a number of endocrine glands linked in causing your symptoms. You can consult an endocrine specialist. The best way to do that is ask around from friends and relatives for a good doctor. Your PCP can also help you locate one.
Hope this helps. Please let me know if there is any thing else and do keep me posted. Take care!

by kenneltech, Nov 01, 2009 11:29PM
To: SurgiMenopause
Thanks to you both for the responses.  I don't have scabies, I had them once, and this is nothing like them, and I asked my family doctor, and I don't have them.  Also, to doctornee medical, I do have liver problems, I have hep C, stage 1, genotype 1A.  They are tracking spots on my liver that they have found, every month, they do a CAT scan.  I don't take hormone pills for menopause, I refused to take them, but mainly because I hardly had any symptoms, but that was over with years ago, and the weight didn't come on then, it was afterwards.

Yes, they did do a 24 hours cortisol test, twice, and it showed nothing.  They are afraid to do an MRI because I am allergic to the dye, but I think that my glands are the problem.  I think I could possibly have an autoimmune disorder, and that I should see a rheumatologist, what do you think?

I have already been to 5 endocrinologists, and all they ever do is check my thyroid levels, my sugar, my liver enzymes and my cortisol levels.  An endocrinologist is out.  I have an appointment with a neurodiagnostics center and with a rheumatology center.  Please tell me you think I'm going in the right direction!!!  I just don't know where to turn anymore.

by SurgiMenopause, Nov 02, 2009 09:16AM
To: kenneltech
The doctors  don't always recognize scabies, I can tell you, but your own experience prior I think would tell you if it was the same, so glad you don't have that aggravating problem, it sounds like!  Maybe neurodiagnostic is the right direction.  If you have joint or fibromyalgia symptoms, a rheumatologist is the dr. to see.  
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