I finally managed to get an appointment with my Gp. Recap I have had an undiagnosed neurological disorder for 2 yrs. I have gait problems due to exercise intolerance. Clonus( take clonazapam to control it) stinging burning pains in most parts of body, other sharp pains in arms, legs, ribcage, toes on both feet lock completly any slight change in temperature and ataxia. I had an mri brain scan, spinal tap and blood tests, eeg, and nerve conduction test two yrs ago all within normal range. Neurologist said I quote they don't always know what something is until other symptoms arise. Hence I have an undiagnosed neurological condition. I have developed some additional symptoms this year. I started having problems swallowing and pressure across the top of my chest where the coller bone is , gp gave me 8 weeks of omeprazole for reflux which didnt make any difference ,I then developed chest pain whether I eat or not. More recently Ive had pain in my left eye, sore itchy eyelids and as a result my gp sent me to the eye clinic who said ive got dry eyes gave me celluvisc. They said the pain in my eyelid was probably neurological(no neuritus) Apologies for length of this. Anyway I'm going to gps for blood tests what should I ask for I see my neurologist in July and want to see if anything comes up, Thanks Chris
Crystaly .. I feel for you, I really do. I too have many neurological symptoms that dont tie in. Like yourself I have had an MRI brain scan, blood tests and nerve conduction tests (all normal).
My symptoms are all consuming and have completely dictated for many years what I can and can't do in life, e.g. sudden staggering to my lefthand side when im walking, sometimes not being able to walk in a straight line, almost total exercise intolerance, eye muscle twitching, tingling/prickling/itching sensations over my body, involuntary limb movements, eye and cheek bone pain, a feeling of heaviness/weakness on my left hand side, sudden feelings of shock/fright which take my breath away, mental impairment, confusion (not knowing where I am), feelings of pressure inbetween my shoulder blades, ringing in my ears, sudden crashing tiredness which I could almost describe as passing out .. the list goes on.
I have decided just recently to have a look at nutrition, as I probably don't eat as well as I should (but I don't eat badly either) and will be making an appointment with a nutritionist very soon to see if they think some of my problems could be to do with nutritional deficiencies.
I do hope you find a solution to your health problems very soon and I wish you well.
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