This may be a bit long one. I have been sick for years with abnormalties that show up now and then, but now its really bad. I just had to quit my career this week, as I am so sick. I have noy been able to eat without pain or naseua now for almost a month. Severe abdominal pain, Intestinal pain,( I have had three sigmoids that show chronic undefined iflammation ) This week I passed out from not being able to eat, and was in the hospital for malnutrition. CT showed focal intestinal thickening, and the tail of the pancreas shown minimal fullness, and a contracted gall bladder but no stones. I have bouts of rite sided pain for three years. Usualy with mild anemia, potassium loss, and fever. Yet my amylase is normal, except once when just minimaly high. Other conditions I have: ehelers danlos, asthma, CIDP( from gullian barre) Heart arrythmia, dry eye syndrome, autonomic dysfunction, and now pre diabetic. Also the CT scan shown mild atelectasis on the lungs. I did have a nodule on the lung I had followed up for a year but it never grew. I am so sick, ... and in so much pain. Yet I get no answers. My family does have a gall bladder history. My father had these symptoms with the right sided pain and fevers for years, and one day his gall bladder ruptrued and it was gangreen. He had all the tests that I have had that said things were normal, EX: Hydroscan..... ultrasounds etc. I dont get this. I feel like Im dying, and yet I sit at home waiting for another appointment with another specialist. Got my career going this last year after 6 years being home sick, and I just had to quit a job I love. Getting picked up at work in an ambualnce just dont cut it. I need a doctor House.
Other tests that sometimes abnormal are Sed rate gets elevated, Posotive RH factor, Lymphoctytosis with the flares. mild anemia time to time. ... To make things more complicated, I cant have a colonoscopy due to the ehlers danlos, my intestinal walls are thin, and I am waiting for an apointment with a doctor that does capsul endoscopy and just hoping he will even do it . I did have an EGD two years ago, that shown a thicked doudenum, and a mild hernia. That hasnt bothered me since I lost weight. I also deal with frequent kidney stones, and gout like attaks except its not uric acid, and they dont know what it is. ......... Anwway, ..., I just dont know what to do. I feel like no one will help me because they dont have a quik answer, and Im just gonna end up dead. Thats how sick I am now. It also dosnt help that I am allergic to most pain killers and all antibitocs. Even been to an allergist to try to find one I could take with no avail. ( These are true deadly allergies, not side effects) Im falling apart, and cant take another week of this. Anyone on here in Phoenix greater area want to take this on, I would owe you my life. My brother is also having the same nasuea and abdominal pain and his biopsy just shown changes in his stomach wall that they cant explain. Stomach cancer also runs in my family, so I am afraid. Thankyou for listening. I beg any doctor out there to please help me. Im not a difficult patient, just have a difficult diagnosis, and want to get better. Need someone who is willing to take the time to figure this out and mabey save my life. I suspect that the intestinal inflamation be be chrons. I have had bowel problems since I was a teen. Im not almost 40. I go three weeks without a bowel movement, most times, and when I do its dirreah. It feels like it gets stuck high up inside. Enimas dont work. Also had some blood in stool this time around., I couldnt believe the hospital didnt even do a fecal exam with the blood and the contrast I had to drink, made me even sicker.