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Avatar universal

What is wrong with me

This may be a bit long one. I have been sick for years with abnormalties that show up now and then, but now its really bad. I just had to quit my career this week, as I am so sick. I have noy been able to eat without pain or naseua now for almost a month. Severe abdominal pain, Intestinal pain,( I have had three sigmoids that show chronic undefined iflammation ) This week I passed out from not being able to eat, and was in the hospital for malnutrition. CT showed focal intestinal thickening, and the tail of the pancreas shown minimal fullness, and a contracted gall bladder but no stones. I have bouts of rite sided pain for three years. Usualy with mild anemia, potassium loss, and fever. Yet my amylase is normal, except once when just minimaly high. Other conditions I have: ehelers danlos, asthma, CIDP( from gullian barre) Heart arrythmia, dry eye syndrome, autonomic dysfunction, and now pre diabetic. Also the CT scan shown mild atelectasis on the lungs. I did have a nodule on the lung I had followed up for a year but it never grew. I am so sick, ... and in so much pain. Yet I get no answers. My family does have a gall bladder history. My father had these symptoms with the right sided pain and fevers for years, and one day his gall bladder ruptrued and it was gangreen. He had all the tests that I have had that said things were normal, EX: Hydroscan..... ultrasounds etc. I dont get this. I feel like Im dying, and yet I sit at home waiting for another appointment with another specialist. Got my career going this last year after 6 years being home sick, and I just had to quit a job I love. Getting picked up at work in an ambualnce just dont cut it. I need a doctor House.
Other tests that sometimes abnormal are Sed rate gets elevated, Posotive RH factor, Lymphoctytosis with the flares. mild anemia time to time. ... To make things more complicated, I cant have a colonoscopy due to the ehlers danlos, my intestinal walls are thin, and I am waiting for an apointment with a doctor that does capsul endoscopy and just hoping he will even do it .  I did have an EGD two years ago, that shown a thicked doudenum, and a mild hernia. That hasnt bothered me since I lost weight. I also deal with frequent kidney stones, and gout like attaks except its not uric acid, and they dont know what it is. ......... Anwway, ..., I just dont know what to do. I feel like no one will help me because they dont have a quik answer, and Im just gonna end up dead. Thats how sick I am now. It also dosnt help that I am allergic to most pain killers and all antibitocs. Even been to an allergist to try to find one I could take with no avail. ( These are true deadly allergies, not side effects) Im falling apart, and cant take another week of this. Anyone on here in Phoenix greater area want to take this on, I would owe you my life. My brother is also having the same nasuea and abdominal pain and his biopsy just shown changes in his stomach wall that they cant explain. Stomach cancer also runs in my family, so I am afraid. Thankyou for listening.  I beg any doctor out there to please help me. Im not a difficult patient, just have a difficult diagnosis, and want to get better. Need someone who is willing to take the time to figure this out and mabey save my life. I suspect that the intestinal inflamation be be chrons. I have had bowel problems since I was a teen. Im not almost 40. I go three weeks without a bowel movement, most times, and when I do its dirreah. It feels like it gets stuck high up inside. Enimas dont work. Also had some blood in stool this time around., I couldnt believe the hospital didnt even do a fecal exam with the blood and the contrast I had to drink, made me even sicker.
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Avatar universal
Have you ever been tested for colitis?  I have it and it took years to find out because it didn't present with all the normal symptoms.  Sometimes even if you aren't possative for colitis it may still be worth trying a glutin free diet as well as cutting out all lactose ingredients.  Hope you feel better!!!!!!!!!!!!!!!!!!
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Avatar universal
Yes, have been tested and negative.

Ame
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Avatar universal
Yeah., I have suspected Chrons as well, but I think its two things going on, as the right sided pain and nausea are new and different from the intestinal inflmation I suffer. Its just horrible I have both going on at the same time rite now. I now havnt had a bowel movent in a week and a half and in pain, I cant eat high fiber stuff because it just makes the inflamtion worse, and the magnesium citrate, I can never hold down, I cant go to the hospial, been there so many times, and they pretty much ignore me , and say see the GI. But I am,.... and im so sick, I feel like I need to be in there.
Just gave up the job I love this round, because I am so sick I just cant do it anymore. I cant believe in todays medical age, they just release you, unless they know the cause,... no matter that I am not digesting my food and loosing a lot a weight, and in so much pain. I wish I could try a natural doctor. There is a very good one here from NY, but they want $500 for the first visit, and 250 a visit after that.
I am now out of a job, and our income leaves nothing at all. I will have to scrape just to see my
my physcologist, who is trying to help me with the issues of living chroniclly ill. Its a shame my husbands insurance wont cover a natural doc. They wont even pay for chyropractor, or my phsycologist. Im in medical debt up to my elbows now, probably over 60k. Can never own a home,
and cant claim disability, not enough work credits in the rite amount of time. Sure did try to work all year, even had to picked up by ambulance at work for heart condition, that was embarreing, I dont know. This is so depressing. As I sit here, my stomach is in so much pain, and there is not one thing I can do:(
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Avatar universal
go see a naturapathic doctor,a all natural doctor they know best.have you thought that it might be crons? medical doctors agree with the FDA WHO :allow poisons in our foods.I saw a homeopathic doctor which is almost the same as a naturapathic doctor.they can Cure you instaed of covering up your symptoms like a regular md.they will Cure you.they have been known to get rid of cancer.trust me find one they will help you without killing you with bad antibiotics.they are just poisoning your body. I pray you get better soon.peace.
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Avatar universal
Well some good news. One look at my last CT report, and the doctor ordered the wireless endoscopy pill. Thank goodness. Get it done in 10 days:)  

Ame
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