What should I do about my Hyperparathyroidism?

I've had high calcium level and high PTH level. I had a Parathyroid Scan, an Ultrasound, and a CT of the neck and chest with contrast. They can not find any tumors. Does anyone have any suggestions?

[crackerjack4u2]

The levels that are high can be due to either primary-which occurs when a tumor is present(which you said you do not have) or  tertiary hyperparathyroidism- which occurs as a result of chronic secondary hyperparathyroidism which is usually due to kidney failure or disease-often following renal transplant. In secondary hyperparathyroidism the phosphorous doesn't excrete properly this causes your calcium to lower and the PTH to increase, your body doesn't absorb vitamin D properly.   With the chronic secondary when it leads to the tertiary hyperparathyroidism both the PTH and Calcium levels increase and your phosphorous levels may decrease but often increase as well.    

Some medications can cause the increases as well, those are anticonvulsants, phosphates, steroids, lithium, rifampin, or isoniazids.

Treatment for tertiary hyperparathyroidism is usually total parathyroidectomy with autotransplantation or subtotal parathyroidectomy.

If the medications are causing the high levels the medications will be changed or removed.

I Hope This Helps                              Have A Nice Night!

[jeanbean12394]

Hi, Thank you for responding,

I'm not on any medications, there is no kidney failure or renal transplant. Now I am scheduled for minimally Invasive parathyroidectomy. The Dr (surgeon) believes there is a tumored parathyroid, so he will be exploratory. I hope I'm making the right choice. The surgeon is very experienced with Hyperparathyroidism.

[crackerjack4u2]

Good Luck jean.  In your original post you said you did not have a tumor.  Why does the surgeon suspect tumors and the other didn't see one on the tests? Does he think they were not able to be seen on the original test?  

As far a questioning your decision,  I really don't see that you have much of an option available other than the one you have chosen because left the way it is you are asking for a lot more severe issues arising from it in the future. Not to mention probably feeling like crap all the time.   I hope everything goes well for you during your surgery.   Good Luck Hun and God Bless.  

[jeanbean12394]

Thank you! I'll post after the surgery.