My basic question is do my symptoms suggest Pudendal Nerve Entrapment? And is it rare that I started experiencing rectal pain approximately 6-8 months *after* Allodynia struck my body?
Here are the reasons explaining why I believe I have PNE:
-Allodynia (extreme burning, stinging, itching) throughout my body, but definitely most bothersome around genitals/thighs/inner legs
-Extreme rectal pain all the pain, but absolutely aggravated by sitting for any extended period of time (use of 5% Lidocaine is the only 'treatment' that provides (temporary) relief)
-For a couple of years now I've had trouble emptying my bladder completely: essentially, everytime I use the washroom I feel the need to empty out a little more urine 2-3 mins after previously voiding (additional urine does indeed manifest itself)
-No medical explanation attained yet for my pain (medical tests so far have ruled out MS, Fibromyalgia, and other neurological conditions, STIs, Hepatitis, Lyme Disease, skin disorders/rashes, etc.)
-For the last few years I've worked in a factory where I sit on a forklift for 6 hrs a day, 5 days a week (and when not at work I sit for many hours at my computer)
-I worked out at the gym doing heavy weight-lifting for about 2 yrs before the Allodynia gripped my body (I would often feel 'pressure' on my tailbone when doing Leg Press)
If my Pudendal Nerve is indeed trapped (or at least aggravated), is it rare that I started experiencing rectal pain many months after my genitals/thighs/inner legs began stinging, itching, and burning? The Allodynia is definitely more bothersome when my body temperature rises (e.g. the weather gets hotter, I engage in physical activity, etc.). Is it possible that PNE could cause Allodynia in places other than my pelvic regions? Although nowhere near as bothersome, I certainly do experience skin burning on my lower back, underarms, and rarely my stomach and calves.
Can anybody think of any other medical conditions which may explain body-wide Allodynia and extreme rectal discomfort (especially when seated)?
Is it advisable for me to have a low back/spine MRI performed?
I am currently waiting to hear back from the Wasser Pain Management Clinic in Toronto in order to be (hopefully) seen by Dr. Gordon and Dr. Peng.
Any thoughts on my conditions would be greatly appreciated.
Welcome to the MedHelp forum!
Well even though it looks like PNE, PNE will not cause allodynia all over the body. Your problem looks more like Crohn's disease. The symptoms of diarrhea etc can start late. However skin problems, mylagia or muscle pain, rectal pain, joint pain etc can start years earlier.
Crohn’s disease is a difficult entity to diagnose. Along with gut symptoms skin disorders and arthritis too are commonly seen with Crohn’s. An upper GI series using barium dye is done to see the condition of small intestines. The degree of involvement of the large and small intestine may vary from person to person. A biopsy is the most confirmatory. An elevated ESR, low protein, minerals and iron in blood are the other findings in Crohn’s which may or may not be present. A recent advancement in Crohn’s diagnosis is video capsule endoscopy.
Please consult your PCP for primary examination followed by proper referral to a GI doctor.
I have not considered Chron's Disease as a possible diagnosis. However, after spending some time researching the condition I have doubts as to whether I may be suffering from it. Essentially, I have nearly none of the key symptoms associated with the disease. For instance, there have been no changes in my appetite or desire for food since my pain started. I do not experience abdominal pain nor do I frequently vomit. I have never noticed blood in my stool and unless I eat a lot of dairy I do not regularly experience diarrhea. I also have never noticed any puss or fluid-filled blisters anywhere near my anus (although, as previously mentioned, I do indeed experience extreme rectal discomfort all around the skin of my anus). Finally, I experience Allodynia in my legs whereas my understanding of CD is that it affects the upper body only (from mouth to anus).
I'm not sure if this is relevant but when I take Oxycodone-based pain medications my Allodynia, especially in/around my genitals, gets much worse, especially in terms of itching.
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