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extreme swellng from my stomach to my feet! Need Help!

by dadams2000, Oct 15, 2009 09:16PM
For the past 4 years I have had periods of swelling of my feet and ankles.  None lasted more that a day or so.  About 6 weeks ago I noticed is was picking of a little weight and that some of my clothes were getting tight on me.  I was glad to be gaining weight because I have never been over 104 lbs in my 57 years.  With in the next 3 days my feet and ankles were swelling and this time they weren't going back to normal size.  In the next 2 days my legs were swelling also along with my stomach.  The swelling has continued and is all over!  In 4 weeks I have gained 50 lbs.  I has seen 3  doctors and they have all performed test on me.  Nothing really has be outstanding in the results of all the blood tests, scans and x-rays.  I did test positive for hepitis B which threw me for a real curve considering I have not has sex in 7years, am not a druggie and have  lived a very secluded live those past 7 years.  I was the sole caregiver for my stroke ridden Mother all thoses years and the only time I left her house was to run short errands.  Mother could not be left alone, she could not do anything for herselp and I would have a friend stay with her while I was gone. I did not want to put her in a nursing home where she would be looked out for by strangers.  I wanted her to be at her home in her bed where she knew she was loved and safe.  Therefore, I closed up my house and moved in with Mother. None of these errands took over an hour.  I do have advance SLE lupus and hypertension.  My hypertension is being controll with Norvasc and Prinivil.  I do take several prescribed medications for my lupus and depression but have been on all of the meds for years.  All of the blood test have come back withing normal limits.  The scans have shown an enlarged bladder and some of the lower portion of both lungs a collasped due to the extreme excess of fluids. Also the scan show that my bowls are full of fecal mater.  I have gone from weighing 103 to 153!  My skin hurts, my diaphram, stomach, sides, legs feet and toes are so large that my skin is starting to break open.  My doctors have but me on diuretic, laxatives, enemas but I am not losing the swelling.  I am so uncomfortable and it hurts so bad to move that I cry sometimes.  My Mother past away June 2 of this year and I am very thankful to God that I did not get sick while she was alive.  I have seen my dermatologisty, my family doctor, and my gastrologist.  Next week my gastrologist has me scheduled to see   an urologist.  I am so large I can only get into a very lose flowing bathrobe.  I am only 5'1" so all the extra weight on me is a very big burden to carry around.  Has anyone come across anything like this??  Please someone out there help me!  I am desperate.  I mentally and physicallly can't hold on much longer, especially since my Mother who was my best friend and I loved her with all my heart and was totally devoted to her has gone to be with the Lord.  I only wish she were her so I could talk to her.  I do have the very best doctors that really care about me and are very concerned but it seems everything is taking so long to figure out.  They are baffled by my condition and are working very hard to help me but I feel I can't go on.  I can't wear my socks, shoes, pants, tops, anything because I am so large.  I know this is not normal and am scared, depressed and feel utterly depressed.  I have always been a very out going person. I always had and still do have horses but I can't even get to the barn to be with them.  My brother and friend are taking care of them for me.  I can't even move back home because it is too physically demanding to move 7 years worth of stuff from my Mother's back to my house.  Even if I could I would not have the strength to clean it up before I returned home.  So I am still living at my Mother's house which does not help my mental outlook.  I was ready to start my live back again and move back home with my horses when I became sick.  Please HELP me!!!!!












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