I think everyone has lyme!! I'm starting to worry that these lyme advocates pushing lyme are also creating a new danger, lyme is very real but so are many other diseases that are difficult to diagnose and it's very important to exhaust all the possibilites. The list of symptoms posted above is very general I sent it to an LLMD and was told not to go by it instead was told that Dr. Burrascano's guidelines were the standard most doctors were using.
several times i have mentioned my symptoms to my gp he just laughed im going out of my mind
just punched in my symptoms and you came up have you got a diagnosis yet
I came down with Bells palsey 7 months ago and have eye pain and electris shock on both sides of my face , not just the side with the bells palsey. I went to get a second opinion this time I went to a MS doctor he did a second MRI said he did not find anything . I also have tingling in my left hand just my 3 fingers . started having miagrains but the pain from my head runs from my head to the small of my back the er said oh your having a miagrain sent me home . the MS doctor said if you have MS it could take time for it to show up on a MRI because the scaring does not show up right away. Very hard to deal with all of this I also have nerve pain .
This message that you wrote has been some time ago. Did you ever find out if you had Lyme? My symptoms are the same and doctors do not seem to know what is wrong. I have had the same eye pain and electric shocks. The shocks are now in my heart as well. i dont know what to do.
WOW I went & took the test I have 36 of those symptoms. I guess maybe I should print this out & take it to my doctor.
Do you have lyme disease???????
Thanks
Dana,
Yes, I have Lyme. I've been studying about it for a couple years, and I recognise when other people have the same constellation of symptoms.
The Lyme community has found that many doctors are not familiar with the disease and have difficulty diagnosing it.
The tests that are usually done are not very accurate, and because of this, the diagnosis is based on the patient's symptoms.
This is known as a "clinical diagnosis."
Most doctors are not experienced enough to make a clinical diagnosis of Lyme.
They run the (inaccurate) tests, and when the tests are negative, tell the patient that they don't have Lyme.
The web site I referred you to, the Canadian Lyme Disease Foundation, has a good list of symptoms, geared to people who do not know medical terms.
Look though the other info on the site. Although written for Canadians, there is alot that applies to everyone.
Here is an article for your doctor:
Advanced Topics in Lyme Disease, 2005 (html version)
http://tinyurl.com/l54z8
Here is a helpful support group for patients:
http://flash.lymenet.org/scripts/ultimatebb.cgi
You can post a query on the medical questions forum, detailing your history and symptoms. These people can help you find a doctor who is very experienced at diagnosing and treating Lyme.
By the way, are you in the U.S.? Which state?
Carol
Dana,
Compare your symptoms to these:
http://www.canlyme.com/patsymptoms.html
The visual symptoms, especially, point to Lyme Disease.
Carol
have you had any other strange symptoms that you can remember in the past 6 years?? anything that seemed off and lasted more than 24 hours??
it started strange sensations running down both legs at sametime for 10 months
I started having tingling in hands & feet off & on for several months 3 yrs ago
I also began having visual eye distrotion off & on 3 1/2 yrs ago
the only other eye problem that is off & on is the flashing lights & the muscle pain behind eye
all other eye problems have never went away once they started the visual loss, floaters and line through eyes has never went away, I also have halos, but I have had those as long as I can remember
brain
went to neuro - he said it was miagrain related - but I just can't buy that
I am 33
did you have an mri of the spine or just the brain?
Did you go to a neurologist??? what did he/she say?
How old are you?