getting nowhere medically

Do you have any idea why a spinal fluid leak, that has been ongoing since march of 07, can cause my husband to have this intense feeling of warmth, till he is actually perspiring/wet all over back, head, etc, and then becoming so cold about 15 mintues after episode.  Before they precribed the fludrocortisone, he would actually pass out.  Just get real flushed hot, and then pass out, for maybe 20 seconds.....but now on the meds, he does not pass out, but his BP is all over the place.  Has had the million dollar work up, but no one is addressing the leak!!!  PLease help!!!  He cannot stand living, if that is what you want to call it, like this much longer,, and has lost all faith in medical community.  He almost passed out five times today, and all we got was pass the buck, call this doc or that doc....which i called them all!  And he should have gone to ER, but he said he is tired of being humiliated, and no one taking this seriously.  Thank you!