help

I am looking for someone who can tell me anything about Kikuchi Fujimoto disease.

[poolparty]

Kikuchi Fujimoto disease is very rare in the U.S. mostly found in asian countries It is a non cancerous enlargement of the lymphnodes.It is usually accompanied with headaches,and skin rashes and low grade fevers.If you google it there is a ton of stuff on there that you can read.Good luck!

[cutepoppy]

Kikuchi fujimoto disease or necrotising lymphadenopathy usually affects young females...cervical(neck) lymph nodes are affected..i got one case last year..on FNAC and HPE i saw extensive necrosis but without neutrophils...this disease does not have any cause and it has the clinical features as mentioned by poolparty...

[AndreiaS]

Thank u very much!!!my husband was diagnosed with Fujimoto this year in may.did u really see another person with this disease?!can u please help us with more information?i looked up for everythin u can find on the internet, but our biggest problem is to find a doctor that is willing to help us.we have been seen by ove 8 doctors and they all say that not knowing the etiology of this disease they don't know who to recommend.
My husband has axilar lymph nodes (it was the biggest, and the one that was taken out for the byopsi), clavicular ones,on the lungs and between the lungs (mediastinal).it's been over 6 month and he had fever for 8 weeks.what shoul we do?could we consider a homeopat doctor, and a diet change?

[Dr. Kokil Mathur]

Hi
Welcome to the MedHelp forum!
Kikuchi-Fujimoto disease or technically called histiocytic necrotizing lymphadenitis is a rare non cancerous swelling of lymph nodes, seen mainly in Japan and it is still rarer in other parts of the world. Cause is not known and it is thought to be autoimmune. It presents with fever, headache, rash and lymph node enlargements. Other conditions mimicking this disease are disseminated tuberculosis, lymphoma, SLE, Sarcoidosis, and viral lymphadenitis. It can be differentiated from SLE as anti nuclear antibody, rheumatoid factor, APLA, and Anti-dsDNA are usually negative. However, biopsy is confirmatory. Disease is self limiting. No treatment is usually required except supportive for fever, headache and rash.
Hope this helps. Take care!

[Dr. Kokil Mathur]

Consult a pathologist who can do biopsy for confirmation.

[hunterbob]

You can find everything on kikuchifujimoto on this web site. http://www.thedoctorsdoctor.com/diseases/kikuchifujimoto_disease.htm  
                                                                 Good luck and good health Bob Hunter.

[AndreiaS]

     thank u all for your suggestions!i took every advise from all of u, and i have found a doctor who have had a patient with kikuchi years ago.he told us that doctors started treating fujimoto with a drug called: TARGRETIN (active substance: BEXAROTENUM) and it works!!!!!!
       i hope i can help other people diagnosed with fujimoto by posting this on the forum.
       thank you, everyone!!!!!