severe pain no name no cause

[nekko]

last aug18th2005,I woke up with chest and rib pain,over the months to now it has spread to my neck andupper back,hands and feet,neck and back have no range of motion,in aug 05 I also had a thyroid storm after having hypothryoid for18yrs,on synthroid125now on112.after the storm thepain neverwent away,i also gwt muscle twichinig,my limbs move on ther own during sleep,I gettinglingand buring in chest handsand arms feet all around heels hurt,I have had several blood work ups,mrion neck and brain cat scan on neck and brain,a magnetic bone scan,I see a rhematolgist who spelizes in fibromayalagia,says it is not that he is at a loss,possable small fiber neropathy,but nerec conduction showed nothing,My pain is so bad that no amount of pain meds have enen touched it am on durgsic fentanal patches 50mcg,nerotin,tramadol,hyromorphine,flexil,ativannn nothing works only when i go to hospital iv hydromorphine and ativan,my legs and arms are always heavy,I amtotally disabled,it is making me not have any qulity oflife,ino longer driveand the pain is a10or8 on abetter day over a 10 most ofthe time,i am desperate,i need relief oran answner to what is causing this amount of pain,hope you can give me a direction to go in for the doctors here are at a loss,and are not much help. thank you

[utahmomma]

Get a referral to a neurologist ASAP!  You shouldn't be suffering and your condition sounds neurolgical.  

I know it sounds trite but is there ANYTHING that helps you relax just a bit?  Talking to a friend, soft music, a warm bath . . . anything?  Nothing makes chronic pain worse than having it completely take over your focus and energy.  

Do you have a pain clinic near you that could help with biofeedback, etc. so you can get a bit of relief???

[nekko]

no one in apain clinic in my area will see me they tell me i amto complicated,andon to many meds,i never get any help,i saw a nerolgist he told me fibromyalgia. My rhemy sent me wasmadbecause he treatsfibro anditsnot that

[utahmomma]

What you are experincing is NOT fibromyalgia.  Can you make an appointment with a different neurologist or at least an internal medicine specialist?  

Have you considered alternative medicine (massage, accupuncture, etc.)?  It might relieve a bit of pain until you can be seen.

[sweetnshyisme]

I have been having chronic pain/high fever and a elevated white blood count for 3 months now. Docs dont know wht is going on. Seems like this occurs after making love. It isnt so much uncomfortable while doing it,,its knowing the outcome afterwards. This is weird and hard to live with..Doubles you over the next day and for 2 days afterwards a high fever of close to 103. Any help or advise is greatly appreciated..God bless

[crystaly]

I agree see another neurologist your symptoms do sound like they are neurological. I,m one of the many on the forum with an neurological problems with no known cause but meds have helped to control some of the symptoms when theyve been really bad. I am also severly disabled by it so I know how you feel. I also had normal emg,brain scans two yrs ago.