spacticity ?

[makina]

please describe how it feels like.
i just want to see if thats part of my problem
thankyou

[cheveyo]

on my right hand, my four fingers have locked down in a clinched fist position. it has been this way for a year, it is extremely painful and my nails are growing into my palm. i can't move my fingers at all, i have gone to so many doctors and they don't know what's wrong. i've had blood poisoning three times so far from my nails in my hand. does anyone have any advise for this. i can't work i've totally lost the use of my right arm, and of course i'm right handed. i need help....even hand specialists i've gone to say they have never seen anything like this. if i don't get some help, dr.s have told me i could lose my arm or even my life from this. any ideas out there????

[Suzi7]

HAVE ANY OF YOU TRIED LDN? IT HELPS WITH LEG/FEET CRAMPS.
FATIGUE GONE.  IT WORKS IN ABOUT 4 DAYS.  JUST THOUGHT I'D MENTION IT BECAUSE IT MIGHT HELP.  IT HELPED ME. 4.5 MG

[crystaly]

Hi Thanks. Im coming off all my meds at the moment too see what I feEl like . I have never had any scans or xrays of my spine or neck . I got stuck in the neuro dx box due to the myoclonus I think. My neuro said sooner or later something else will crop up which help dx. Like you my symptoms have neve gone away completely . I get bad periods when something new crops up and that stays along with the other things. Been really reluctant to use a wheelchair but come to terms with the fact If I don't I can't really go out as Ive had numerous bad falls. I suppose sooner or later I will get some answers . Hope your keeping well . Take Care XX Chris

[makina]

yes several emg over 8 yrs.  all normal
only carpel tunnel

[crystaly]

I have allsorts of symptoms eg electrical pain, stinging ,burning swallowing problems pains almost every where etc Too many to mention really but I have severe walking dificulties now as well. My symptoms have never gone away completely . I now have to use a wheelchair when out of the house or a scooter to get about otherwise i would actually be housebounds. My toes spasm and lock completely as well. I,m unique my neuro says but I know I,m not because of being on this forum there are so many like me I couldn't believe it. My problems are neuro related but unknown cause movement disorder etc. Does the weather effect you at all? Have you been on any meds ? Chis

[crystaly]

Apologies for piggybacking Makina. Youngat heart have you ever been on clonazepam at all . I think Ive spoken to you before have you got progressive ms long time dx it? XX Chris

[makina]

i take zanaflex up to 20 mg in a day.
i am gonna call doc tomorow since its not helping.  
taken robaxin, fleril (n help)
i started out with lyrica.  but i never took it right.  skipped arond so i didnt get good history of it.  doc said he gona put me back on lyrica if zanaflex dosent work.

weather i dont know.   but i think when on pms it gets wors

[crystaly]

Read your other posts and yep I get eye pain ( hurts and most of the other stuff you do ) I take clonazepam (for the myoclonus)  and amitryptaline ( works well for nerve pain) Presently coming off all meds as the clonazepam has sedative effect. Certainly go back to your dr and speak to them if there not providing any relief. Did you have a nerve conduction test at all ? XX Chris

[makina]

well i have spasms but this partcular can be entire leg.  like an intense throbing pain.  yet nerve pain in it and goose bump like electirc feeling and pulling muscle sensation.  its pretyy painfull

[makina]

yes several emg over 8 yrs.  all normal
only carpel tunnel

[crystaly]

Its really weird isnt it. Ive only had my problems for two yrs or so. I live in the uk and getting tests done are difficult once youve had them and there normal range. My neuro told me that they can't alwas find a cause as they dont know enough about the brain and spina;l cord hence my undx neurological daignosis. Sounds like your symptoms fit in the same box but thats not a lot of help really is it! If you don't mind me asking how old are you. Chris

[makina]

i am 28.  i got married at 19 and it all started and got worse with first pregnancy then with fu shot.
mu neuromuscular doc is really goo.  he listens.  he explained that i showed feel good about the fact that 8 yrs and test still normal.  he said it dosent mean nothing is going on.  it just mean whatever i it is is not life thratning or progressive.  he said just look at the emgs.  i have had probably 5 in 8 yrs and still no change.  he sayid that i need to stay active and fight this fight other wise muscle will waste not from disease but no use of it.  so i go to yoga once a while.  its hard.  he said all these meds are just to make quality of life better.  he said even if he was to figure out what it is majority of these neuro stuff has no cure.

[crystaly]

Hi I think your right about maintaining life as normally as you can but sometimes it can be hard to remain positive I think. yOU HAVE A GOOD attitude SEEING YOUVE HAD THESE PROBLEMS 8 YRS but were all human and finding a dx for your symptoms is a logical thing . I,m a bit older than you ( 49 oops ) and yes I think your neuros response eg. I dont think its progressive etc. is meant to reassure you that nothing serious is going on. Depends how you look at it really serious in terms of health or quality of life. Theres a big differnce as far as Im concerned. But I wish you all the best anyway. Certainly GO BACK AND SEE YOUR dR ANYWAY RE YOUR MEDS. iM OFF TO BED NOW ITS 1.10 AM IN THE uk AND i,M A BIT TIRED . Speak to you again sometime.lol CHRIS

[young at heart]

No I have not tried clonazepam.I have had severe med allergies and afraid to switch.i'm currently taken 20mg baclofen 4x aday and zanaflex 8mg 4x a day for the spacticity and valium as a rescue when the other meds don't work.Usually when I have over done.
Yes,I have progressive MS.2 years of multiple DRs and test.My MS effects my spine.
Don't give up on not finding a DX for your symptoms.Spacticity comes from the spine.Usually the C-Spine.

[makina]

well see its so hard to explain.  i mean it dosnt feel rigid in hat sense.  it feels like muscle bieng pulled apart like tight.  in skin also.  plus in it i feel stabbing or shooting.
hmmmm its all so strange

[young at heart]

My spasticity can be extremly painful.I have had episodes to where I have not been able to straighten my legs,the muscles continuely get tight and resist movement.I have constant muscle spasms,certain movements can bring them on.The muscles can get extreme charlie horses that can physically drain me.At night these can wake me up to where the muscles are tugging across the joints and its severe pain to straighten the joint.I have been on zanaflex , baclofen and quinine.I no longer take the quinine.The combination of the zanaflex and baclofen have improved the spaticity.

[crystaly]

Hi I added to your post below Ive had ongoing problems similar to yours . I have spastic muscles in my legs amd myoclonic jerks. It feels like someone has put rigid splints on my legs when I stand up, kind of hard to explain really but feel like a robot. Its akinf of stiff rigid feeling plus myoclonic jerks when I attempt to walk . Is this what yours is like. chris